My boys both have epilepsy. So far they have only had seizures during sleep and they are very specific - vomiting, incontinence, awake, but not responsive verbally for up to an hour. I did have to administer Diastat on Friday night to Nathan. The school nurse wants him to have the Diastat at school now in case of emergency. The neurologist is ok with it either way saying that if it's that bad a paramedic can administer the medication the child needs. I have some issues I've never dealt with before now. The school nurse leaves at 3:00 and preschool goes til 3:30. She says she's the only one that can administer the Diastat. According to what I can find of the law another trained professional could administer it (like his teacher), but do I want to push that??? And what happens come to Kindergarten. Can they still ride the bus?? Go on field trips?
They don't have IEPs as there are no delays currently. They could use 504s I would think if it comes down to it. My point is it they only ever have happened when sleeping so in K it won't be an issue (unless their type of seizure changes which it could), but in PreK they do have a rest period and sometimes they do actually sleep based on teacher report.
If your kids have Diastat at school what is the protocol?