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September 2013 Moms
Plarios
member
Lurker, but wanted to share my LO's health story (long)
Plarios
member
Hello ladies,
I have been an extreme lurker. I am a FTM and I downloaded TB in the end of my 1st tri and love to read all the stories, questions, and recommendations. My DD was due on 9/28 but was born on 9/13. This will be long, sorry.
I wanted to share my LO's story because my baby's breathing was always noisy and fast from birth,
And because her pedi kept telling me it was normal. As the weeks went by, the stridor was progressively getting worse. I was in and out of dr and hospital visits. They were not concerned because she didn't have any blue spells, no vomiting or diarrhea, she was gaining weight, her oxygen level was always 100%, and she would never have a fever.
She was obviously in distress because she wouldn't really sleep, she was having mild to severe retractions, and none of the medicines that were given to her seemed to work for long time, they would only suppress her symptoms for a little bit.
Within a span of a month, She was misdiagnosed with croup, and I kept pushing her pedi to find the true cause, since they initially thought it was just a floppy airway as well. Finally she referred me to an ENT specialist where they did a bronch, and found that my LO actually had a benign tumor (subglottic hemangioma) rapidly growing in her trachea, which was already blocking 85% of her airway. After the bronch, we were sent to the Pediatric ICU, where she had a breathing tube and feeding tube in for 4 days while they tried to bring the tumor down in size. She will continue to take medication for the next year and half and will have to go under another bronch around that time to make sure it's gone or close to that.
I just wanted to share my story with you ladies, because I knew something was not normal and I did not take no for answer. Thank you ladies for your time
ETA: I am on mobile, I did do paragraphs, I hope it shows up. Edit: for typos
I have been an extreme lurker. I am a FTM and I downloaded TB in the end of my 1st tri and love to read all the stories, questions, and recommendations. My DD was due on 9/28 but was born on 9/13. This will be long, sorry.
I wanted to share my LO's story because my baby's breathing was always noisy and fast from birth,
And because her pedi kept telling me it was normal. As the weeks went by, the stridor was progressively getting worse. I was in and out of dr and hospital visits. They were not concerned because she didn't have any blue spells, no vomiting or diarrhea, she was gaining weight, her oxygen level was always 100%, and she would never have a fever.
She was obviously in distress because she wouldn't really sleep, she was having mild to severe retractions, and none of the medicines that were given to her seemed to work for long time, they would only suppress her symptoms for a little bit.
Within a span of a month, She was misdiagnosed with croup, and I kept pushing her pedi to find the true cause, since they initially thought it was just a floppy airway as well. Finally she referred me to an ENT specialist where they did a bronch, and found that my LO actually had a benign tumor (subglottic hemangioma) rapidly growing in her trachea, which was already blocking 85% of her airway. After the bronch, we were sent to the Pediatric ICU, where she had a breathing tube and feeding tube in for 4 days while they tried to bring the tumor down in size. She will continue to take medication for the next year and half and will have to go under another bronch around that time to make sure it's gone or close to that.
I just wanted to share my story with you ladies, because I knew something was not normal and I did not take no for answer. Thank you ladies for your time
ETA: I am on mobile, I did do paragraphs, I hope it shows up. Edit: for typos
This discussion has been closed.
Re: Lurker, but wanted to share my LO's health story (long)
Sorry to hear how difficult it must have been going in and out of the hospital but I am glad you did not take no for an answer, Way to go!!
Toby, my furry baby
BFP: 1/17/13 EDD: 9/20/13 Dalenna Rose Born: 40 wks 4 days 9/24/13
FTM to my sweetpea Miss D.
My DS was also born on Sept 13th. It's amazing that they are already 11 weeks old today.