Another update on DD's kidney issue

crene84 · November 2013

We had a follow-up with the kidney doctor. Sounds like we probably won't get a real diagnosis..maybe ever..most tests have come back good. A couple came back abnormal, but the doctor still doesn't have enough information to say much. Basically we know that she has extra calcium around her kidneys and isn't retaining fluids like she should so we just have to give her lots of liquids and continue monitoring her throughout her life. It's frustrating, but I guess probably better than having every test come back extremely negative...

Flamingemu · November 2013

I am sorry you still don't have any answers. I hope she stays healthy and strong for you.

miss50 · November 2013

Wish you had more answers...but glad little one is fairing well.

crene84 · November 2013

Sahara78 said:

Sorry you didn't get any answers; it must be very frustrating. I am glad the tests weren't negative, though.

Do you know if either of her birth parents have kidney issues in their families? I wonder if someone may have similar symptoms (with a diagnosis).

I spoke with her birth mother and she said that her and her daughter do not have any issues. Her mother, however, does have some kidney issues but as an adult and they are pretty minimal..no "diagnosis" to speak of, just that one of her kidneys doesn't currently function at 100%.

Unknown · November 2013

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AKB090609 · November 2013

I'm sorry you weren't able to get as many answers as you wanted, but I'm glad you have a plan to move forward.

watercolor5 · November 2013

Frustrating to not know for sure what you're dealing with, but sounds like good news that it's not a clear-cut negative diagnosis. Hope it doesn't turn into a bigger issue and she stays healthy!

MeatballEsq · November 2013

Ugh that's good and bad news I guess. Great news that its nothing more serious, but I agree with PPs that it would be really frustrating

bosha711 · November 2013

How frustrating! Continued thoughts & prayers for your DD. Maybe sometime in the future, there will be a test that can tell you exactly what's up.

MommaP12 · November 2013

I'm sorry this isn't completely behind you and hope sweet girl stays healthy.

hmp1 · November 2013

Sorry it wasn't the answers you were looking for but glad it wasn't worse. Hopefully with time, medicine will catch up and make her well.

eshee8198 · November 2013

It must be so frustrating not knowing. Good thoughts for continued good news on her tests, and continued good health. She's adorable.

ktnicole · November 2013

Glad you checked in! So frustrating to not know. *hugs*

Stasi · November 2013

Sorry you didn't get any concrete answers, but I'm so happy that it's nothing serious!

Cheenomae · November 2013

How frustrating. Glad to hear though that doctors are thinking as long as you keep up with medical checks she should be just fine!!

jenndub · November 2013

That's such a bummer that there was no diagnosis, but I'm glad to hear she's doing well.

L8kissie · November 2013

I'm glad that it is something that is manageable. Hopefully it becomes a nonissue. I'm sorry for the concern and frustration of the unknown.

jocymama · November 2013

I'm sorry you did not get an answer but I am glad that it is nothing serious.

melody921 · November 2013

So sorry you and DD have to deal with this. Hope she stays healthy and it will just be routine checks along the way. It's so frustrating to not have a concrete answer to what's wrong.