Both dh and I work full-time, so when ds was born early and with many needed medical appts, surgeries, and therapies (up to 5 per week), it was a LOT to manage and maintain our jobs, but we somehow did it. We were very grateful for generous bosses and flexible schedules to get through. Ds is doing very well now (will be 3 yrs in Jan) and only needs some minor OT and oral motor help. That said, dd, who is 10 months, was diagnosed with severe hearing loss last month. We now have a much fuller understanding of what that means. We started her in weekly auditory-verbal therapy, but now realize that in order for her to get the hearing, listening and language that we want for her, it is going to be a full-time effort. She was at a daycare center that she did great in, but that just isn't going to cut it now. We could hire a nanny, but the truth is that neither of us trust a nanny. There is an amazing oral school for her that she can start in September, so we just need to bridge the gap somehow until then. I really want to stay home. But I am active duty and can't take unpaid leave, and we depend on my insurance which is a very critical part of all of this. This area is also so expensive and I bring in more than dh. So that leaves dh, who is now about to ask his boss for 3-4 days off per week until September... I will use my leave to take 1 day per week as much as possible too so dh can stay somewhat connected to work.
We are just so tired and overwhelmed, but we need to make this happen since her future depends on it. Anyhow, just wondering if anyone else has been in a similar position with work.
Re: Surviving two SN kiddos with full-time jobs in tact
It's exhausting but we don't have any other options. DH bring more than me and I carry the insurance.
Good luck!
If our appointments were more therapy oriented still, and not specialist a, b, c who only see patients on this day at this time outpatient, then it might be different.