Moms of Mo/Di question

Paradisemoon · November 2013

I'm not the type of person that takes what my doctor says as the law of the land. I value their expertise and opinion but I always like to check to see if what they say is outdated or anything else. Is there a trusted website or foundation/organization where I can read more on Mo/Di twins?
I see a group of OBGYNs that all specialize in different areas. There are 2 high risk doctors that are familiar with and have delivered twins before. I just feel better if I know ahead of time any questions I should be asking if something concerning should come up.
Thanks.

jezebel57 · November 2013

i am part of 2 groups on fb that are modi twins/pregnancy related. just search mo/di.

that being said, some people in those groups scare the heck out of me with something called TAPS, which is a form of acute TTTS characterized by anemia/polycythemia. it only affects 3-5% of mo/di or mo/mo and most of that percentage is people who have had the laser surgery for TTTS. their recommendation is to have your MFM scan for the MCA-PSV (middle cerebral artery) at each scan. my MFM does not do this but I am trying to show her journal articles that it can be helpful when fluid is equal and there are no other signs.

aside from that, i find it somewhat helpful because topics come up there that are very different than di/di moms would have.

just realized this answer was all over the place. sorry!

kiwi443 · November 2013

I would recommend the TTS foundation website (https://www.tttsfoundation.org/). It's important to be aware of the warning signs/proper monitoring.

raraavis28 · November 2013

jezebel57 said:

i am part of 2 groups on fb that are modi twins/pregnancy related. just search mo/di.

that being said, some people in those groups scare the heck out of me with something called TAPS, which is a form of acute TTTS characterized by anemia/polycythemia. it only affects 3-5% of mo/di or mo/mo and most of that percentage is people who have had the laser surgery for TTTS. their recommendation is to have your MFM scan for the MCA-PSV (middle cerebral artery) at each scan. my MFM does not do this but I am trying to show her journal articles that it can be helpful when fluid is equal and there are no other signs.

aside from that, i find it somewhat helpful because topics come up there that are very different than di/di moms would have.

just realized this answer was all over the place. sorry!

Oh wow, I hadn't heard of TAPS before....certainly glad I didn't hear about it during my pregnancy....I was enough of a nervous wreck as it was! Ditto @kiwi443 on the TTTS Foundation website; it has a wealth of information.

Mrs. Alice · November 2013

kiwi443 said:

I would recommend the TTS foundation website (https://www.tttsfoundation.org/). It's important to be aware of the warning signs/proper monitoring.

This. They have a great info and even a checklist of what to ask at each u/s. If you have any TTTS concerns there is also a FB group that is really wonderful too.

Paradisemoon · November 2013

Mrs. Alice said:

kiwi443 said:

I would recommend the TTS foundation website (https://www.tttsfoundation.org/). It's important to be aware of the warning signs/proper monitoring.

This. They have a great info and even a checklist of what to ask at each u/s. If you have any TTTS concerns there is also a FB group that is really wonderful too.

Great! Thanks ladies, this is exactly what I was looking for! Much appreciated.

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