Over the last few weeks I have been seeing a Fertility specialist and there seems to be sooooo many issues that have come to light. I come here for real advice and support. Outside of the TTTC community everybody just says it will all work out...but will it really. Ok well in the last 3 weeks I was diagnosed with PCOS, U/S showed a "pearl necklace" as the doctor called it. Then blood tests showed a high level of testosterone and AMH. During the u/s doc saw a pelvic mass so he ordered a MRI. While all this is going on I have been bleeding for 33 days. I got the MRI results this weekend and doctor said I only have one ovary , the right ovary never descended. And I only have 3/4 of a uterus...with only half on my right side. He also saw fibroids and polyps. So I am now working with one ovary that polycystic, and a deformed uterus with fibroids. Doctor has order a scan to see if I have a right kidney, I guess no right ovary could also mean no kidney. And doctor wants to do an HSG to see if the left tube is a viable tube. Please ladies give it to me straight is this horrible news.... I haven't even shared the results with my husband yet I just don't want him to lose hope. And I kind of feel like a mutant...:(
Me: +35 DH: +35
TTC: Since January 2013
DX: PCOS. Severe Endometriosis, Unicornuate Uterus w/only left tube and left ovary, Pedunculated fibroid (on the outside of uterus) and Anovulation. All conditions diagnosed 8/13
TX: Metformin
DH DX: MFI - low morphology, low motility
Ultrasound shows both kidneys in spite of UU.
HSG showed clear tube on the left side.
Lap Surgery performed 1/9/14 to remove fibroid and endo (Stage 3)
IUI# 1 June 2014 started 100 mg of Clomid - 7dpiui Progesterone: 13: BFN
IUI#2 July 2014 started 100 mg of Clomid - 7dpiui Progesterone: 5.75: BFN
Natural Cycle - so shocked to be in 2WW - 7dpo Progesterone: 15.5: BFN
Working with new RE starting injectables in late August.
I don't have any advice for you I just wanted to say good luck and I hope you get everything figured out!
Married 8/6/2011
Me (26) DH (33)
SA normal,HSG clear
TTC since August 2011
7/2012 50mg Clomid+Trigger+IUI+progesterone =BFN
8/2012 100mg Clomid+estrogen+Trigger+IUI+progestrone=BFN
10/2012 100mg clomid+Gonal+Lupron+Trigger+Progestrone+IUI=BFP but ectopic.
I am very sorry for you - and what you have discovered. It will be hard but do speak to your Husband, he will love you and you two will get through this together. Hugs to you. Best of luck as you begin to devise a plan to get healthy. You are not a mutant. You are unique and you will find a way to have a family.
Siggy Warning... loss mentioned
Married since March 2008 -- Me- 31 DH - 30 Trying to grow our family since 2009... Diagnosed Unexplained Infertility
Started seeing RE Aug 2013
Cycle #1 – IUI #1 10.31.13 - BFN
Cycle #2 - IUI #2 cancelled – FAIL
Cycle #3 - IUI #2 12.27.13 BFN
Cycle #4 - IUI #3 1.24.14 BFN
Cycle #5 - IVF #1 with ICSI(2 3bb blasts) 3.19.14, no frosties.. BFN
Surprise BFP on 6.10.14 ... Miscarried 7.7.14
Walked away from Fertility Treatments and began to look into our Foster/Adopt License in April 2014.
What a blow! I'm sorry that's far from the news you were anticipating. I don't know anything about the medical side of things, so I won't comment on that. What I will say, though, is that you are in the right place for emotional support and let your RE handle the medical side. Trust that your doctor knows what they're doing and will be able to take care of it, or provide you with other options or a referral to someone who may be better able to address the health concerns.
As far as feeling like a mutant, I've been there. I'm very fortunate to have an amazing husband who is very sensitive to my feelings and has never once made me feel like I'm a mutant, less of a woman, or that this is my fault. I wish the same for you, in regards to your husband.
What your doctor discovered is called a Muellerian Anomaly. I also have a muellerian anomaly although not the same as yours. When I found out this forum gave me great support and pointed me towards very helpful links such as this one https://mulleriananomalies.blogspot.com/?m=1
When I found out my news sharing it with my husband and having him by my side through all the testing was my comfort and my rock. Hope you find the link helpful.
*Losses mentioned*
Me: 34 DH:32
TTC #1 since Dec 2011
HSG = tubes clear, bicornuate or septate ute; MRI= severe arcuate uterus no septum seen
SA #1 low count, low morph; SA#2 4% Morph, count OK SA#3 july 2014= NORMAL!!!
9/2013 IUI#1 w/Clomid 100mg = over response; cycle converted to cryoocyte IVF
IVF #1: 9/15 ER= 9 mature eggs, all eggs made it thru vitrification
10/23 ICSI 6 fertilized; 10/28 5dt of two morulas. Hold on to me babies, stick, stick, stick!!
11/6 BFP EDD 7/14/14 Beta #1= 18; 11/9 Beta #2= 44.8; 11/12 Beta #3= 7 = Early loss @4w6d. No frosties
Feb 2014 Hysterscopy = no septum seen ute all clear in the inside
Update: Thank you ladies for all of your supportive words and resources. I told my husband and being the man that he is he just asked, "Well did the specialist say you can't get pregnant." I said no and he said, "I love you and we will get through this..." And I also found out I have both kidneys....so off to my HSG appointment to see if the one ovary is attached to an open tube. I never thought I would be so happy about having two kidneys. I will say this whole IF stuff has really humbled me...I guess in preparation for motherhood....xoxo thank you Ladies!
Me: +35 DH: +35
TTC: Since January 2013
DX: PCOS. Severe Endometriosis, Unicornuate Uterus w/only left tube and left ovary, Pedunculated fibroid (on the outside of uterus) and Anovulation. All conditions diagnosed 8/13
TX: Metformin
DH DX: MFI - low morphology, low motility
Ultrasound shows both kidneys in spite of UU.
HSG showed clear tube on the left side.
Lap Surgery performed 1/9/14 to remove fibroid and endo (Stage 3)
IUI# 1 June 2014 started 100 mg of Clomid - 7dpiui Progesterone: 13: BFN
IUI#2 July 2014 started 100 mg of Clomid - 7dpiui Progesterone: 5.75: BFN
Natural Cycle - so shocked to be in 2WW - 7dpo Progesterone: 15.5: BFN
Working with new RE starting injectables in late August.
Wow...that is a lot to take in! I don't have much advice but if it helps any, my mom only has one ovary & she was able to have my sister & I with no problems:) Your DH is right & you will get through this together. IF sucks but I honestly think it has made me & my hubby even closer. GL with everything & I hope you get more answers soon!
Me (36) - LOR, DH (34) - MFI (low count & poor motility)
TTC since 01/2012
11/2012-04/2013 Unmonitored Clomid cycles through OB/GYN; Referred to RE
Hugs. It sounds overwhelming but try to tackle one problem at a time. I had a huge polyp in my uterus that was discovered after heavy bleeding and it was really no big deal to get it removed so hopefully your mass will take care of the bleeding too.
Re: SOOO Many Issues
***BFP and Loss Mentioned in Siggy***
Me: 39 (PCOS)
DH: 47 (slightly low volume...considered MFI)
TTC since 11/2012
10/2013: IUI#1 BFN - 50mg clomid, two .75mg shots of Bravelle, ovidril trigger...1 follicle
11/14/13: IUI#2 BFN - 50mg clomid, two .75 mg shots of Bravelle, ovidrill trigger..2 follicles
IVF #1 w/ICSI: ER 3/12/14; ET 3/17/14: BFP!!! Beta #1 3/31/14=1540; Beta #2 4/2/14 =2551
Twin A became an angel on 4/30/14 (8w6d)
Twin B became an angel on 5/21/14 (11w6d)
D&C 5/23/14
FET#1 - 9/2/14 - BFP!!! Beta #1 (9/15): 926. Beta #2 (9/17): 1946.
MC -9/20/14FET#2 - 4/20/15 - BFP!!! Beta #1 (5/4): 1277. Beta #2 (5/6): 2817. US#5 -153 heartbeat.
Due Date: January 6, 2016
Started seeing RE Aug 2013
Cycle #1 – IUI #1 10.31.13 - BFN
Cycle #2 - IUI #2 cancelled – FAIL
Cycle #3 - IUI #2 12.27.13 BFN
Cycle #4 - IUI #3 1.24.14 BFN
Cycle #5 - IVF #1 with ICSI(2 3bb blasts) 3.19.14, no frosties.. BFN
Surprise BFP on 6.10.14 ... Miscarried 7.7.14
Walked away from Fertility Treatments and began to look into our Foster/Adopt License in April 2014.
Our Journey Blog... http://salatafamilyest2008.blogspot.com/
When I found out my news sharing it with my husband and having him by my side through all the testing was my comfort and my rock.
Hope you find the link helpful.
Me (36) - LOR, DH (34) - MFI (low count & poor motility)
TTC since 01/2012
11/2012-04/2013 Unmonitored Clomid cycles through OB/GYN; Referred to RE
05/2013-Benched due to cyst
06/2013 - Clomid 50 mg + HCG Trigger + TI = BFN
07/2013 - Clomid 50 mg + HCG Trigger + IUI #1 = BFN
08/2013 - Clomid 50 mg + HCG Trigger + IUI #2 = BFN
09/2013 - Benched for lap & hysteroscopy (Stage II Endo Removed)
10/2013 - Menopur + HCG Trigger + IUI #3 = BFN
11/2013 - Menopur + HCG Trigger + IUI #4 = BFN
12/2013 - Clomid + HCG Trigger + IUI #5 = BFN
2/2014 - IVF #1 - Microdose Lupron Flare Protocol - 5R/4M/4F w/ICSI; 2 embies transferred on day 3 (none to freeze)
2/27/14 - First BFP Ever!!! EDD 11/3/14