Panorama twice inconclusive UPDATE

MrsG325 · October 2013

I am feeling deflated. Yes like a deflated balloon. My dr called and yet again inconclusive panorama test. This is 4 weeks of worry waiting and wondering. Now what do I do? I'm feeling very anti amnio and my dr is pushing it on me as well as my husband. Then my mother basically forbids me from doing it. So yeah, I'm just sitting her all deflated wondering if ill get to be excited about this pregnancy ever

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Thank ladies for your input. We have a limited anatomy scan today and decided to make an appointment with a genetic counselor for next week. Hopefully we can decide the best plan for us and this LO. T&p that this was all for nothing and we have a healthy peanut!

TallaB · October 2013

Sorry your results have been inconclusive. But, I really don't think your mom gets a say in your prenatal care. Your husband and you have to sit down and discuss it amongst yourselves and do what you BOTH feel is best for baby. Goodluck!

MrsG325 · October 2013

I don't think I can do an amnio. I'd never forgive myself if I had a complication from it and lost the baby. I'd love to hear personal experiences

jobabyyy · October 2013

That sucks.

I agree that you and your DH should make the decision about further testing. It's okay for family to give their opinion, but ultimately it is your choice.

MrsG325 · October 2013

ColleenSwerb said:
I'm sorry, I don't recall the backstory as to why you need the test. I assume you're at risk for something?

While I fully understand that it's very different for me say, not being in the situation or facing the risks, do your research on the amnio and the reasons your dr is heavily recommending it. I do not believe that drs push that procedure for no reason, and I also have read/heard that when done by an experienced professional the risk is significantly lower than the "average" that gets tossed around the web.

I came back 1-180 for trisomy 18 in my initial bloodwork which to me doesn't seem very bad after looking into it. Another dr I see said she wasn't worried about those odds (I see a 6 dr practice). Anyway- I just don't know which direction to think ad feel very hesitant about an amnio. I'm just feeling sad and lost and don't want to put my very possibly healthy baby at risk. The dr recommending the amnio by the way wanted me to just do that before anything else because results come back faster etc

Rrrrrachel · October 2013

Fwiw I have a friend whose currently on hospital bed rest at thirty weeks (and she's been there for a few weeks) because she's leaking amniotic fluid they think from her amnio site. I think you have to look at what information it's going to give you and how that information would change your plans over the next few months. Hugs. I know it's got to be hard to be in limbo for so long.

Teresa1896 · October 2013

Sidebar: how can the test be inconclusive? I'm not sure how it works.

In your shoes, I would do whatever my doc recommended. They are taking the risks into account and still pushing you to do it. That tells me that the information and knowledge you'd gain from the procedure outweigh the risks.

But at the end of the day, you need to make a decision you're comfortable with. Follow your heart. Good luck!

MrsG325 · October 2013

Thanks ladies- I guess hearing contradicting recommendations from two of my doctors in the same practice is really confusing me. Ill look for a high risk board.

Angie&Junichi · October 2013

Can you ask for them to do the materniT21 blood test? I am not sure the difference in the 2 but maybe it will give you the answers you need without any invasive tests.

MrsG325 · October 2013

@angie&junichi- thank you I will ask. I think tomorrow at my anatomy scan I can request different bloodwork. Maybe they keep doing panorama because its covered by my insurance

MrsG325 · November 2013

@mummyofsix- I am having a really hard time overcoming my fear of complications. How did you deal?

hordol · November 2013

I had a CVS procedure (different but I still had it through my stomach and CVS carries a slightly higher risk than amnio) and as long as you have a very capable and experienced doctor performing the procedure, you should be fine. That said, I can totally understand why someone wouldn't want to have it and I was against it myself at first. I hope that I don't have to make the decision about whether or not to do one again. For me, it would depend on the reasons why I was getting it done. If you don't think you would be able to go without definitive answers and it would change the outcome of your pregnancy or even just change the way you go about your pregnancy, then I would do it. If you wouldn't do anything different, then why risk it?

hordol · November 2013

ColleenSwerb said:
I'm sorry, I don't recall the backstory as to why you need the test. I assume you're at risk for something?

While I fully understand that it's very different for me say, not being in the situation or facing the risks, do your research on the amnio and the reasons your dr is heavily recommending it. I do not believe that drs push that procedure for no reason, and I also have read/heard that when done by an experienced professional the risk is significantly lower than the "average" that gets tossed around the web.

This is true---the skill level of the doc makes a huge difference in the success of the procedure!

ETA: I mean success rates.

While miscarriage rates are typically around 1% for amnio, they could he half a percent or less for good docs.

MamaFantastic · November 2013

colleen said what i was thinking... i happened to read a post over on F14 (it was ziggy's, i think... which explains why i was over there to begin with) where moms were chiming in about the safety of amnio procedures. someone there said it's actually SAFER to do it earlier because you have a higher proportion of amniotic fluid (and therefore room around the baby).

i imagine i would be like mummyofsix and just NEED to know, because that's my own personality. i have a friend who elected to skip the amnio when her baby was found to have multiple confirmed growth abnormalities, and she cited the risk of miscarriage as her reason for declining the procedure. i think in this case, the better the doctor, the better the outcome potential. see if you can go to a really high risk OB and get a very trained person to do it if you do go ahead with scheduling the amnio.

so sorry you're struggling with any of this to begin with

AcaAwkward · November 2013

ColleenSwerb said:

Yes, @spasticfantastic read the same thread I did. It was safer to do it earlier on because the baby is smaller, so the pockets of amniotic fluid are bigger, so the risk is smaller. ETA: Ziggy updated today (I think) and her amnio went great. So, there's that.

I read the same thread... I believe her doctor told her that at an earlier gestational age, with an experienced doctor and a high level ultrasound, the risk was something really low like 1 in 600 of miscarriage???

MrsG325 · November 2013

Commenting to show update

Lindsay808 · November 2013

T&P for it all being for nothing and you have a healthy one!

figgs0831 · November 2013

I hate that you are still dealing with this. I know you have probably researched the statistics already. I think there is less than 1% chance of complications. I just don't know if there is a difference with a multiple pregnancy. That being said, it is a big decision that both you and your DH need to decide. Your mother does not get a say in this.

Also, maybe you can check out the high risk and special needs boards. You may be able to get better information on what others have experienced with these tests. Just remember... these are just odds. The majority of the time, babies are absolutely fins.

NYJodway · November 2013

Thoughts and prayers for you, LO, and DH!

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