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March 2014 Moms
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Mass/cyst in baby's lung

BonadlBonadl member
in March 2014 Moms
Anatomy scan on Monday showed that baby has small mass in lung called a CCAM. Small now but from what I've read it grows mostly between weeks 20 and 26 (I'm currently 19 weeks). Prognosis is good but will likely require surgery in little one to remove...depending on severity it could be right after delivery or sometime later in first year. I really still don't have too much info...my first appointment is with a Perinatologist on Monday where they will repeat the ultrasound. I was really not expecting this...but I guess no one does since the chances are 1 in 30,000. There is a small chance it could disappear before delivery but I'm trying to get into the state of mind that I won't have my baby right after delivery and that I'll have to plan for surgery as part of my FMLA.

Thought I'd put this out there in the off chance that someone has heard of this and can offer any info. As always, support is appreciated in any form! Thanks for listening!
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Re: Mass/cyst in baby's lung

  • coreyelizcoreyeliz member
    Sending thoughts and prayers to you and your little one. I'm a FTM so I have no experience in anything to offer, but I'm so sorry to hear this. I'll be keeping my fingers crossed for the best possible outcome.
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  • mamamia866mamamia866 member
    Thinking of you! Keep us updated. Prayers it goes away on its own.
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  • ndpoolendpoole member
    I'm sorry to hear what you're going through, but I hope @babycaps post provides some extra comfort & support.


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  • cdnmommacdnmomma member
    Thinking of you and your little one. ❤
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  • kelley72kelley72 member
    I have no experience, my thoughts and prayers are with you and LO! 
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  • ceh789ceh789 member
    I'm sorry for your bad news, but on the other hand I'm so glad it has a good prognosis!  We're so lucky that they can find things like this before LO has related complications, and so that you can prepare yourself mentally.

    Try to keep a positive mindset, and I hope both the Perinatologist and babycaps are able to set your mind at ease.  Did you find out if you're having a boy or girl?
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  • lesleygosoonerslesleygosooners member
    Prayers to you and your little one.
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  • dedeyobadedeyoba member
    I have no experience but you and your baby are in my thoughts.
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  • CeventaCeventa member
    Lots of prayers and thoughts that all goes well!

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  • craftiemommiecraftiemommie member
    Thinking of you and your little one!
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  • JKS21JKS21 member
    Pray that it goes away on it's own!! Either way, baby will be fine it sounds like though!! Positive thoughts!

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  • BonadlBonadl member
    Thanks all. Babycaps I'll take whatever info you can give me! Monday seems so far away. And I have so little information except that the mass is currently millimeters. But from what I've read the big growth period is weeks 20-26, so I don't know if the current state even means much at this point. Ceh789 we didn't find out (team green) but since this news I have a primal gut urge to know the gender so we are going to find out at the next u/s I think. :) Thanks again everyone. I'll post an update for sure once I have more info.
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  • BonadlBonadl member
    Thanks so much for all if the information. I am, luckily, already in the right place -- the hospital my docs are affiliated with is well equipped with both of those "musts". In fact, my doctor said he has seen three or four new patients transfer to their practice in the last year or so with CCAMs just for that reason. He did say that none of those babies had any problems and were in the room with mom and went home within a normal time frame. That does make me feel better but there is still so much uncertainty - i.e. Just because that's how it was for them doesn't mean the same for us.

    Thanks for helping to make me feel a little better about things. The more info I get the more I hope that baby will come out crying and just fine. I assume that the baby will be taken right away to be checked etc and it won't be like a normal birth, is that usually the case? I'm trying to adjust my expectations after a relaxed birthing experience with my daughter involving just two nurses and a doctor.

    My doctor did tell me that I'd be meeting with a pediatric specialist in my third trimester so I'm sure that once we get to that point we will have a lot more information and a better idea of what to expect.

    Thanks again for all the info!! Monday seems like ages away but I'm hoping I'll have a lot more info then, at least regarding our particular situation.
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