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New here,IS diagnosed baby is 3months old, SF area

Elle3Elle3 member
in Special Needs
We love to meet parents in the the same area or/and situation. Phillip was diagnosed 2months Ago with IS. Any help, support , story. Elle Phillip 3months, stef 2 years old
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Re: New here,IS diagnosed baby is 3months old, SF area

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    1+tripsmom1+tripsmom member
    We are in the Bay Area. I am not sure what IS is.
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    MyPB&JMyPB&J member
    Not in your area, but we deal with IS. Our son has Tuberous Sclerosis and is on Vigabatrin. We are early on in this journey as well, but I'm happy to share our info if it helps!
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    Elle3Elle3 member
    Hi myPB&J We tried ACTH, he is on vigabatrin but still not seizures free. next step is the kitogenic diet. How old is your son?have you found any helpful site?
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