Anyone with Celiac Disease?

rw7y · October 2013

Just wondering if anyone here has Celiac Disease or a gluten sensitivity? Tell me your favorite products!

Do you plan to raise your children gluten free?

I've been gluten free for almost a year, but I am still struggling with a lot of symptoms. How long did it take you to start feeling like you're straightened out?

pmreed79 · October 2013

My DH has celiacs, so we live mostly gluten free. I have some things in the house that he doesn't eat, but we are careful about cross contamination.

Our favorite GF products are Pamela's baking mix, Udi's bread, King Arthur GF baking mixes, and Chex cereals. Trader Joes has some great GF products too.

It took DH 6-8 months after diagnosis to be symptom free. He was very sick and it took his system a while to adjust. He is also very sensitive, so we have to be careful to avoid hidden gluten in things like soy sauce, modified food starch, and caramel color.

Our son is not GF (DH didn't develop celiacs until high school/college) and he doesn't have any indications yet of celiacs, but we watch him for symptoms.

rw7y · October 2013

It is the same in my house. Our meals are gluten free, but there are always some things in the house for my husband.

Udi's is really fantastic bread and bagels. Do you use any Bob's Red Mill products? My mom and I bought a bunch of things from vitacost.com and it was so much cheaper. Have you tried DeBole's pasta? It is my mom's favorite. My husband says he can't tell the difference from regular pasta

.

I started last November and I feel like it is basically the same as before I

. All of the stomach issues, I've lost a lot of weight, skin issues, etc. It is really nerve wracking. Doesn't it seem like modified food starch is in everything. I've noticed that a lot of companies have started to be more specific about it. Sometimes if you call they will say if its modified corn, wheat or tapioca starch too.

God willing you son won't develop it.

KingLED · October 2013

I've got celiac's and have been GF this time for about 5 months. I don't really notice feeling better, but I definitely notice if I somehow eat gluten.

My h doesn't eat gluten free unless we're having a meal together, then whatever we're having together is obviously gf. I don't see a benefit to having anyone eat gf that doesn't medically require it. I don't buy many gf pre-packaged products, I make most everything from scratch. I order most of my flours/starches from Amazon. Bobs Red Mill has some good deals. I do buy gf (corn/rice blend) pasta from random places when I feel like having pasta, but that's not very often.

I still haven't found any good corn tortillas that I like. I started making my own corn meal and I'm going to try making some of my own soon. If we ever make pizza I make it gluten free. THIS is the recipe that I use. It's really simple and tastes great.

janda426 · October 2013

I was diagnosed in June but am going for a second opinion bc I've heard this guy likes to diagnose EVERYBODY with celiac's. I know I am lactose intolerant, so I think that may have been the culprit to my stomach issues. But nonetheless, I still eat gluten free until I know for sure.

My favorite products are Trader Joe's organic brown rice spaghetti and rotini noodles (seriously we eat these alone and they taste JUST. LIKE. REGULAR PASTA) Another GREAT pasta is Tinkyada brand, it's at our local Shoprite and it's also really good and has a lot more variety.

Trader Joe's has tons of GF options. They make really good chocolate chip cookies that come in a yellow bag- I mean, it's not good for you, bc it's cookies, but the option to satisfy your sweet tooth is there. I liked their GF personal pizza too.

Udi's is kinda over rated to me. I haven't tried anything by them that's amazing. All they make is junk food. Their muffins are pretty good though. Haven't tried the pizza dough.

Van's gluten free waffles, which most grocery stores carry. They're your typical cardboard tasting frozen waffles but they're good when I'm lazy and don't feel like making anything for breakfast. They taste like Eggos. Maple Grove Farms gluten free pancake/waffle mix is the shiz-nit. I get mine from Christmas Tree Shops (random place for cheap gluten free stuff) and Target.

Amy's frozen meals for work are good too. There's also this new brand called evoL and they make some good frozen meals too. Don't eat the chicken quesadillas they make-ugh. disgusting.

I second the recommendation for Chex cereal. OMG. I'm obsessed with the chocolate and vanilla flavors. With almond milk. mmm.

Glutino is a good brand also, but VERY pricy. A bag of GF pretzels from them cost me $6.00. They make good bagel chips and crackers. Their version of Nutrigrain bars are meh. Too much crumb. I'm also OBSESSED with their vanilla creme cookies.

Bob's Red Mill flour is great. I've heard bad things about GF flour but scored with this one right off the bat. It doesn't taste any different to me. The bags are SMALL, making the price expensive for what you get, but hey, that's GF life for ya.

I signed up for the Taste Guru subscription box which allows you to sample different GF brands, and loved the products I got, but cancelled my subscription bc they're too small a company and apparently can't function right and the products didn't always add up to be worth more than $25. And I kept getting billed for multiple boxes. Their customer service is great, but I was sick of having to email them every single month. Also they sent me moldy tortillas and muffins. You just can't ship a frozen food item in a warm, dry box... I love the idea, but it wasn't implemented so well.

It's overwhelming at first, but there really are so many options you can slide right into the empty spaces gluten-food leaves behind. I was a huge pasta lover and can still enjoy big bowls of pasta when I crave it. You can still bake brownies and cakes and cookies, and eat crackers with cheese.

Also FYI-save ALL receipts from GF purchases because you can write off the extra cost for GF food since it's for a medical condition. Just have all the receipts and a letter from your doctor in case of an audit.

rw7y · October 2013

@EllyD14

You're sure right about that. Eating gluten by mistake is awful .

Do you still get stomach aches a lot?

My husband is the same. He just eats gluten free meals with me. I'm lucky because he is Saudi and used to eating a lot of rice :P.

Good on you for making most things yourself. I don't buy many pre-packaged products because of the cost, but I do buy some mixes. I like the Bob's red mill pizza mix and the pancake mix .

Let me know how it goes making the corn tortillas. I buy some from the store just because sometimes I want sometimes to put other things in…peanut butter, turkey…anything, haha.

Thanks for the recipe! I will give it a try for sure.

@janda426

Did you know that a lot of people with celiac disease are also lactose intolerant? so there could be a connection there. My mom is that way.

I have never tried anything from Trader Joe's. I guess I will have to try it. I have tried Tinkyada, but I prefer the DeBoles .

I usually make a type of shortbread cookies from scratch, or peanut butter cookies because you can make them with very little ingredients.

The only thing I've tried from Udi's is the bread and the bagels. The bread is only good for me if I toast it and same goes for the bagels. I've tried making my own bread and it is always like a rock. I usually get one loaf of Udi's bread a month and keep in in the freezer just in case.

Chexxxxx!! Yes! I eat them with almond milk too. I also recently made GF chex mix. They have some recipes for gluten free on the betty crocker website (I think that is where I found them).

I got a big bag of white rice flour from vitacost.com for $10. Maybe check out that website if you like Bob's red mill. They have a lot of other products too.

My mom did taste guru for a couple of months, but also had issues and recently cancelled. The last box had a bunch of GF protein powders that are perfect in green smoothies.

To be completely honest, I have no problem giving food up. I don't miss it, but these days I'm still not feeling well so that makes it suck more.

janda426 · October 2013

I'll check out vitacost! And I've never heard of DeBoles but if it's better than tinkyada I'm interested! Also idk if you've ever had Ancient Harvest quinoa/corn pasta but good lord is it awful. I've found that I hate most corn substitutes. Brown rice substitutes are more palatable IMO.

Oh and Glutenfreeda instant oatmeal with flax is really good too! Forgot to include that one. Pamela's baking mixes too. I keep remembering as I go lol

rw7y · October 2013

Tinkyada is still good, but I feel like DeBoles cooks well. Like it doesn't break apart as easily if that makes sense?

Just make sure to try the rice pasta. The rice with flax tastes good, but basically turns to mush when it is cooked >_<. I was laughing with my mom last time we tried that kind. It was a spaghetti and it ended up looking like some kind of risotto :P.

Glutenfreeda is nice! I usually bring nutrition bars with me when I travel. Larabar brand is good. They are made with dates.

rlyttle · October 2013

I'm celiac and I don't buy a lot of pre packaged GF food, but when I do I buy- Udis bread products Gluttino Bisquick GF Mix Pillsberry GF Betty Crocker GF Chex GF Mostly I stick to making GF meals. Breakfast is the easiest for me. Eggs & meat. For lunch I usually eat leftovers from dinner. Tonight for dinner we had roast in the crock pot. Tomorrow we are having tacos. DH eats all my GF meals, but he does eat gluten in his breakfast and lunches, and so does DS. It was hard at the beginning, but now it's easy since we have a nice menu.

Hilary232 · October 2013

I was diagnosed with Celiac's Disease when I was 18 (9 years ago) after a year of being constantly sick and losing 30 pounds in 3 months. Back then, there wasn't too much that was gluten free and tasted good.

I eat Rudi's gluten free bread and make almost everything from gluten-free Bisquick mix. You can make cookies, pizza crust, breading for chicken tenders and, my personal favorite, chicken pot pie. Ronzoni has gluten free pasta now too, and that is really good (better than DeBoles and Tinkyada). Chex has a lot of gluten-free options now too. And the options that Betty Crocker has for desserts is perfect for a sweet tooth!

My husband eats almost everything that I do except for the pasta and bread because it's expensive. If/when we have children I probably won't start out with a gluten free diet right away.

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