Toddlers: 12 - 24 Months

Anyone suffer from interstitial cystitis?

I had an ultrasound done yesterday to rule out fibroids and the OB thinks I have interstitial cystitis with my symptoms. I'm going to see a Urologist the end of this month but wondering if anyone here has been dealing with it? I've read there's no real cure and it looks to be a very frustrating condition. Any advice would be great!
Thanks!
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Re: Anyone suffer from interstitial cystitis?

  • i have cyst issues as well they havent really given me answers cuz my doctors are dumb... the last time i dealt with my doctor i had surgery twice to remove them and the last time they went in they waited so late they ruptured... mine are always on my ovaries. and with me already having fibromyalgia it makes the pain more intesified... i am in constant pain. and when i have cysts it makes it hard to be able to do much of anything. and alot of times sex becomes unbearable. i suffer alot, and i dont trust my doctors anymore because they have proven they dont want to help. i suffer through in silence now... im sorry your in pain and dont know what to do... but there isnt a cure for my problems either so i completly understand and literally feel your pain. feel better im sorry i dont have good news or the answers you want but i want you to know your not alone when it comes to the pain.
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  • Not many people answered you so I thought i should give you my experience, even though it is mildly relevant.  I had a client (teenage male) with IC.  He described it as very uncomfortable and there was not "cure" for it, but I believe he was on medication to treat it.  I wish you well with it.  
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