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April 2013 Moms
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Helmet wearers!

JordynLeighx3JordynLeighx3 member
in April 2013 Moms
Isla and Halle have officially been in their helmets for 4 weeks! I wasn't able to get before pics of Halle, she was being sassy, but I did a comparison to see how much change there was in a months time! Can't believe it! As hard as it can be to help them adjust, all I can do is encourage other mommies to just bear with it, it sure does pay off!
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Re: Helmet wearers!

  • suedellsuedell member
    Absolutely. When I wasn't sure if I should put a helmet on DS1, i just kept telling myself that it's like braces. I would put braces on his teeth if they were out of alignment. So glad to see that LO is doing well!
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  • Erin10408Erin10408 member
    That is incredible!
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  • Jenn5412Jenn5412 member
    edited September 2013

    OMG that is wonderful!  I'm so happy for you and the girls!  Her head looks so wonderful! 

    Jordyn - if you don't mind me asking what was the girls starting CI?  I had my son at the cranial facial specialist and his CI is 89.  Normal is 71-80 and my insurance will cover the helmet at a CI of 83 with a script from the doctor. 

    However, the doctor said he won't write the script because it would be cosmetic and not medical and he said it was unethical.  I asked why would my insurance cover it at 83 if they didn't feel it was needed.  He wouldn't budge....

    I called the local orthotic company (who uses StarBand) and am waiting for a call back.

    I am so frustrated and worried that I may have to start all over with a new doctor... I want to do the right thing for my LO and feel like I'm not getting anywhere.

     And I did compare helmet therapy to braces and the doctor just disagreed with me. 

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  • JordynLeighx3JordynLeighx3 member
    Jenn- get a new doc! It is much more than just cosmetic. I don't know for sure numbers but it was somewhere in the high high 90s. There were different categories of severity with severe being the highest, they were both WAY off the charts passed severe!
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  • JordynLeighx3JordynLeighx3 member
    We got back tomorrow so ill ask, and reply if I remember. We also didn't start helmet therapy until the girls were a week shy of 6 months so the fact that they've made this much progress even though the odds are against starting that late gives me hope!
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  • megandscott07megandscott07 member
    Thanks for posting this! Jacob got his helmet last week and we have our first follow-up appt tomorrow. I am hoping it works quickly, although he really doesn't seem to mind it!


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  • JordynLeighx3JordynLeighx3 member
    @Jenn5412 - their numbers were 96.4 and 96.3. Today they were down to 93.0 and 91.6 after a month of wear! Our specialist was MORE than pleased!
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  • melissad23melissad23 member
    Maddie is/was at a 99!! Jordyn- your pics were super encouraging. Thanks :)
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  • JordynLeighx3JordynLeighx3 member
    My pleasure! Hopefully since you got a jump start a little sooner than we did, you'll notice even more progress!
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  • Jenn5412Jenn5412 member

    @JordynLeighx3 I just spoke to the doctor on staff at the ortho company and she said that a CI of 89 is mild brachycephaly, but with out facial/head asymmetry is not typically treated.

     She told me that 89 is often the goal CI of many of her patients. 

    She told me that with continued repositioning and LOTS of tummy time I should see additional improvement. 

    I'm glad I spoke to someone from the ortho company to get another point of view.  Many people say the ortho companies tell everyone that their kid needs a helmet. 

    Did your specialist give you a goal/exit CI?

    @mellisad23 - were you told a goal/exit CI?

     

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  • JordynLeighx3JordynLeighx3 member
    We were not given any goal but we've made so much progress in the last month so I hope it only continues!
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