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Preemies
aliwisewoman
member
NICU mom's check-in!
aliwisewoman
member
in Preemies
How many weeks pregnant would you be?
How long has your baby/babies been in the NICU?
Milestones, issues, goals, etc?
How are you holding up?
How long has your baby/babies been in the NICU?
Milestones, issues, goals, etc?
How are you holding up?
This discussion has been closed.
Re: NICU mom's check-in!
32 weeks tomorrow
How long has your baby/babies been in the NICU?
They will be 2 weeks old on Wednesday!
Milestones, issues, goals, etc?
Vincent (Baby A) got his PICC line out and he is taking full feedings as of the night before yesterday. Then last night he started spitting up. They are holding steady on him for now hoping that he will adjust. Dominic (Baby
How are you holding up?
I'm not really. My 4 year old started preschool today and I had to leave him there, crying and screaming for me. It also messed up my usual NICU schedule so I'm a freaking disaster today. On top of all this stress my H is being a huge jerk because he sees I'm stressed and can't fix it. Oh yeah, that's helpful. I hate feeling so helpless and out of control. I hate my MIL calling/texting to ask for an update. I usually update about once per day or every other day depending on what's going on. That isn't enough for you, woman?!! I'm barely holding it together here!!! Rant over.
How long has your baby/babies been in the NICU? 1 week 2 days
Milestones, issues, goals, etc?
She is out of the incubator but she is bradying more and spitting at feeding
How are you holding up?
I am ok but exhausted I am thinking of giving up breastfeeding because I barely get anything
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Went to Beer Center- high tnf, low lad, implantation failure
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature
Yours doesn't have to be a sad story
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Went to Beer Center- high tnf, low lad, implantation failure
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature
Yours doesn't have to be a sad story
38 weeks today.
-How long has your baby/babies been in the NICU?
99 days
-Milestones, issues, goals, etc?
We are hoping to bring Beatrix home tomorrow but it all hinges on her eye exam scheduled for 7:30am. At last week's exam she had stage 2 ROP in one eye and stage 2-3 in the other. If her eyes have progressed then she most likely will need surgery and therefore have to stay.
-How are you holding up?
I want what is best for Beatrix but I am ready to go home. This journey has been a roller coaster and while I know my life will never be normal again I could use some normalcy. I am grateful for the wonderful care she has received and thankful for her progress and relative good health. I miss my DH and our pets.
BFP #2 - Sylvie V. Q. born and died on 10.28.11 at 21w.
BFP #3 - Evie V. Q. Fetal demise @ 16w. DC 7.8.12
BFP #4 - Beatrix V. Q. Born 6.2.13 at 23w6d.
My blog My chart
How many weeks pregnant would you be? 34 and 4
How long has your baby/babies been in the NICU? 1 week today
Milestones, issues, goals, etc? Umbilical line being removed tonight. Hoping he tolerates his feeds & at 8 they will up him to 32 cc through the tube. Attempt to remove nasal cannula. They've tried twice, but he retracts a little more than they'd like. Keeping my fingers crossed. Biggest thing is now that his UV line is coming out, I should get to do skin to skin tomorrow! I've been DYING for this as I feel I really have not been able to connect with my baby yet.
How are you holding up? Eh. My big kids (3 1/2 and 1 1/2) are all off schedule and cranky from bopping around with grandparents all week. They want me to hold them, which I can't and it makes me feel terrible. Trying to get back on a schedule and figure out how to fit in pumping and trips to NICU....
---35w1d
How long has your baby/babies been in the NICU?
---Just over five weeks
Milestones, issues, goals, etc?
---well, we were getting ready to start nuzzling/nippling, but they detected a murmur. She went back on the vapotherm due to struggling a little with wall air (too dry) and now were unable to do oral feedings bc of the vapo. We have a cardiologist consult tomorrow so well see what they say; the neonatologist thinks it could be a PDA.
How are you holding up?
---Im doing ok. Frustrated by this latest setback because it always seems to be something. Started out with having trouble conceiving, crappy pregnancy, early delivery and now NICU. I can't help but think about all the things we've been "cheated" out of. Some days are worse than others with the pity party. I went back to work last week and luckily I have the most amazing boss ever. I was going to come to the hospital for her appt today (got bumped to tmw) and use it as my lunch break and she told me to just take my computer, use the wifi there and "work". Super supportive and has said from the get go that if I need or want to see her at any time to take a break and go see her--the work can wait. Feels good to have such support at work.
Hang in there!
31 weeks on thursday
How long has your baby/babies been in the NICU?
Since birth 9/8
Milestones, issues, goals, etc?
Off cPAP! upped her feedings to 6. I was able to supply enough for one of her feeding to be all my milk! She still hasn't pooped so fx that happens soon. Doctor said her jaundice will probably be bad enough in the morning to put her on the billi light. That's hard for me because her and I both love our skin-to-skin time.
How are you holding up?
like everyone else here knows it's so hard. I'll be getting discharged soon. The thought of leaving her is hard but at the same time it gives me a chance to get everything ready for her at home. I'm so grateful and lucky to live 2 minutes from the hospital. That has made the thought of going home a lot easier.
@luvboston
I get how frustrating breastfeeding can be! I was so upset that for awhile i would pump every 2-3 hours and get nothing, not even a drop! Stick with it if you can but if it becomes more of a stress then do what's best for your family! My LC told me to not look at how much was coming out just focus on something else, the amount is not what is important. You are trying and anything you can give is great!
How long has your baby/babies been in the NICU? Both of our babies have been in the NICU for 2 weeks,
Milestones, issues, goals, etc? Jacob should be getting extubated here in just a bit and then Joe should be hopefully getting extubated this week. I am hoping they are able to re start Joe's feed's as he has some belly stuff going on
How are you holding up? I am doing okay, my hubby is heading home today so I am sad about that. But my cousin and her mom are coming to visit and see our boys for the first time. My mom is also heading back here tomorrow to stay with me all this week.
Me (30) my best friend (38)
TTTC since "Jan 2011"
RE appt april 2012
Dx: PCOS and stage 1 endo
S/A 19 million, 48 motility, 1 morphology
6.1 progestrone
HSG: tubes clear
clomid 50mg + #1 IUI + trigger 6/9/12 BFN 6/18/12 Clomid 150mg +#2 IUI + trigger: 7/9/2012 BFN 7/18/2012 stage 1: endo removed 8/14/12
Letrozole 2.5mg+estrogen=cycle cancelled for little to no response
Follistim 75 (10/15-10/19) follistim 67 (10/20-10/21) cycle cancelled due to over response 9 follies and very thin lining
~ IVF #1:BC pills started 10/27~
~IVF class schedualed for 11/13~
~ Lupron starts Thanksgiving day~
~Stims start December 1st~
~ER: December 12th ~
~ET: December 15th~
19 R. 12. Fertilized with ICSI, 2 transfered
only 1 made it to freeze!
Beta #1 12/27/12 (26)
beta #2 12/29/12 (78.9)
Beta #3 12/31/12 (149)
Beta #4 1/4/13 (48)
C/P on 1/4/13 @ 5 weeks and 2 days
~ IVF #2 ~
~ BC pills1/15-2/3~
~Lupron beings 1/31~
~stims start Feb. 9th~
~ER 2/21/13~
~14 R, 12 fertilized with ICSI~
~1 made it to freeze~
P/SAIF Welcome~ everyone welcome