Community› The Bump Message Boards› Special Needs
Special Needs
New Discussion

Osteogenesis imperfecta

Erinvp120Erinvp120 member
in Special Needs
Any moms out there with kids with OI? Or they themselves? I'm desperate! I have linked with some support groups. Just looking on here too as a different option! TIA
Report Reply to Post

Re: Osteogenesis imperfecta

  • MamatoJacksonMamatoJackson
    Hi! I'm rarely on but a friend let me know about your post. Feel free to email me at momtojando@gmail.com.

    My 2.5 year old has OI Type 1 (and autism) and her OI is hereditary... My husband and a good portion of his family has it.

    Feel free to email if I can help with anything! Hang in there!
    Warning No formatter is installed for the format bbhtml
    Report Reply
  • Loading the player...
  • Erinvp120Erinvp120 member
    I knew id cross across SOMEONE! Thanks for reaching out. It's such a relief! My 19 month old has (via blood work and genetic testing type iv) but all his doctors put him in the type 1 category because he's done so well. He has had 2 fractures. Has your baby had any to date? Thanks again!
    Report Reply
  • Erinvp120Erinvp120 member
    My husband and most of his family have it as well!
    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"