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November 2013 Moms
firefliesandfjords
member
Eating, growing, progress!
firefliesandfjords
member
Hi! It's been such a long week. Barely been able to find the time to keep family and friends updated via FB. But I found a few spare minutes!
Kate is still doing great: She is above birth weight, and has been for several days after a bit of a roller coaster in regards to weight. She is now just 7 little grams shy of 2 pounds, and is getting 18 CCs of milk every three hours, with little to no aspirate! Her TPN and PICC line were discontinued yesterday, her bili light has been off for quite awhile (I lost track of how many days it's been), and her bravery bead string is almost full, so the little champion is going to need another one soon! We're still on CPAP at the moment, but having very few heart spells...she went almost 48 hours without one a few days ago. I'm hoping it can be removed relatively soon - she hates it, and is always trying to rip the mask off.
Kate is still doing great: She is above birth weight, and has been for several days after a bit of a roller coaster in regards to weight. She is now just 7 little grams shy of 2 pounds, and is getting 18 CCs of milk every three hours, with little to no aspirate! Her TPN and PICC line were discontinued yesterday, her bili light has been off for quite awhile (I lost track of how many days it's been), and her bravery bead string is almost full, so the little champion is going to need another one soon! We're still on CPAP at the moment, but having very few heart spells...she went almost 48 hours without one a few days ago. I'm hoping it can be removed relatively soon - she hates it, and is always trying to rip the mask off.
She is the snuggliest, feisty-est (haha), strongest little girl I have ever seen! She has been able to keep her temp up for long periods (she went three hours a few days ago for the second time) during Kangaroo care, and lets the nurses know that she doesn't want to go back in her isolette when it's over. 
Pumping is going well, although has slowed down a bit...I didn't eat well a couple of days ago because I got overwhelmed, but it's going back up now that I'm eating better again. Everything is still very surreal and my husband and I are exhausted. He's been making the hour and half drive each evening after work on days that he's scheduled, and I've been here and not been home since last Monday. I was luckily able to return on Tuesday night because I found out the hospital will allow me to stay even though Kate isn't able to breastfeed yet, so long as breastfeeding moms don't need a room. When my husband is here (along with the car) and doesn't have work in the morning, we get to stay at a couple's house in the area. They are the aunt and uncle of the husband of a distant cousin of mine (crazy connection). It's nice to have a place to go other than a hospital room on those days!
I am going to go home tonight, because I really need to. I'm very conflicted, and it's hard to leave, but at the same time I'm burned out. I'm not sure if I'll be able to handle being away for two nights, but I at least have to try one for my own sanity - days are blurring together and I feel like I'm going a little crazy being here so much (as guilty as I feel for feeling that way).
Thank you all for continuing to think of us and pray for us. You are helping make miracles!
I attached a few pictures, the second one you can see her about to try to rip off her CPAP mask. I can't believe how much she's changed already...she'll be two weeks tomorrow!
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Re: Eating, growing, progress!
It is absolutely amazing to here how she is doing! Your pictures are amazing! I will continue to keep your family in my prayers.
Love to hear that she is doing so well.
Absolutely do NOT feel guilty! Hospitals are exhausting places even if you aren't the patient.. The whole environment is very draining. Taking care of yourself is taking care of Kate. I know you know all this, but hearing it from someone else often helps.
Wyatt Born 09/05/08 MC Jan 2012 MC Feb 2012 MC Jan 2013
August Siggy Challenge
Prayers for continued progress, and for some much needed, and well-deserved rest for you guys!
:x