TTCAL Lurker Question (Bicornuate Ute) Pregnancy Losses Mentioned

PinkCamino · August 2013

****** Siggy Warning - PG Losses Mentioned ********

Hi ladies!

I'm PC. I post mostly over TTCAL and my history is in my siggy. I've posted my question on TTCAL but right now there are not many ladies dealing with these uterine anomalies.

I don't have formal diagnosis yet but my uterus was said to be "heartshaped" and I'm waiting to undergo further testing (Pelvic MRI and Saline Sonohystogram)

I was wondering if anyone here has gotten a bicornuate ute diagnosis and what your REs proceeded to do for you or are planning to do? Have you undergone or plan to undergo surgery? Or, what is your plan?

Also, does a pelvic MRI and Saline Sono sound sufficient at diagnosing this? What tests did you have done to get it diagnosed?

Thanks in advance ladies! So sorry to storm in on you guys.

monimu13 · August 2013

You are of course welcomed here! I dont have any personal experience with structural anomalies, but I know there are a couple here on the board. Hope you get some answers soon!

PinkCamino · August 2013

monimu13 said:

You are of course welcomed here! I dont have any personal experience with structural anomalies, but I know there are a couple here on the board. Hope you get some answers soon!

Thanks @monimu13

I'm so incredibly sorry for your losses ((HUGS))

PinkCamino · August 2013

Wolfette139 said:

Hi PC, I recognize you from TTCAL lurking. I am so sorry for your losses.

The pelvic MRI should give you the answer on whether it is a BU or a SU (septate ute). I'm not sure what can be done to correct a BU, but many women with SU have corrective surgery done. There is a great Mullerian Anomaly group on Yahoo, it has tons of great information and wonderful knowledgeable ladies. https://health.groups.yahoo.com/group/MullerianAnomalies/

Sorry you find yourself going through this. MAs suck!

Thanks!

Yeah if I end up with a SU I know that there is corrective surgery. I was told that with a BU there really isn't much that can be done but I've spoken to a few ladies who have had it apparently (partially) corrected. The question remains though are they calling their SU a BU kwim? As far as I know or my surgeon has told me BU can't really be treated.

MA do suck.

xoxo
PC

princessisadora · August 2013

@Pink Camino An MRI should provide an internal as well as an external image of the ute. I just recently had one done to differentiate between a bicornuate (BU) or septate ute. No septum was seen internally and my ute was finally classified as a severe arcuate uterus.
My RE had discussed with me if I did indeed possess a BU surgery is not usually attempted as correction would involve major metroplasty as it is not only the inner appearance that needs to be alter but also the outer. He also explained that Undergoing this type of sx brings on complications such as bleeding, formation of fibrous tissue and adhesions among others.

PinkCamino · August 2013

@Pink Camino An MRI should provide an internal as well as an external image of the ute. I just recently had one done to differentiate between a bicornuate (BU) or septate ute. No septum was seen internally and my ute was finally classified as a severe arcuate uterus. My RE had discussed with me if I did indeed possess a BU surgery is not usually attempted as correction would involve major metroplasty as it is not only the inner appearance that needs to be alter but also the outer. He also explained that Undergoing this type of sx brings on complications such as bleeding, formation of fibrous tissue and adhesions among others.

This is what I've also been told. A metroplasty is extremely dangerous. Thank you so much for sharing your experience.

PinkCamino · August 2013

Wolfette139 said:

Pink Camino said:
Thanks!

Yeah if I end up with a SU I know that there is corrective surgery. I was told that with a BU there really isn't much that can be done but I've spoken to a few ladies who have had it apparently (partially) corrected. The question remains though are they calling their SU a BU kwim? As far as I know or my surgeon has told me BU can't really be treated.

MA do suck.

xoxo
PC

I would imagine it was actually a SU if they had a resection done. I remember going into my MRI hoping it was an extreme SU, then there would be a chance of making my uterus "normal" through surgery. So much for that though.

Oh, and to answer the other part of your question I only had a pelvic and abdominal MRI done to confirm my UU.

Thank you for sharing your experiences with me. I'm so sorry you got a UU diagnosis. I'm at the stage know where I'm almost hoping for a septate so it can be corrected. Some silver lining kwim? Although, with my history they're leaning more towards BU.

((BIG HUGS))

monimu13 · August 2013

Pink Camino said:

monimu13 said:

You are of course welcomed here! I dont have any personal experience with structural anomalies, but I know there are a couple here on the board. Hope you get some answers soon!

Thanks @monimu13

I'm so incredibly sorry for your losses ((HUGS))

thanks

Olive925 · August 2013

Hi, PC. I'm sorry about your diagnosis. I have been diagnosed with a bicornuate uterus. Everything I've read on BU is that they don't do corrective surgery. My RE said that the risks of further problems outweigh the benefits, and they didn't find that pregnancy rates were much better post-surgery. It's a bummer! Hang in there. I hope you find out what you are dealing with soon.

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