High-Risk Pregnancy

May-Thurner and Factor V Leiden

Hi,
I'm not pregnant yet, but I would like to be.  My husband and I are trying, but the more I read, the more discouraged I become; sometimes I'm just plain scared and I feel like I'm losing my nerve.  I don't want to never have a child because I am afraid, but it's complicated...
I just turned 36, I was recently diagnosed with Factor 5 Leiden heterozygous, and May-Thurner Syndrome.  I had a massive blood clot and a PE when I was 23, as a result, I have 2 stents in my left leg.  My husband and I have been to pre-conception counseling with my regular OBGYN and a specialist and neither Dr. seemed overly concerned. I would just need an 'theraputic' dose of Lovenox twice daily for the duration of my pregnancy and 6 weeks postpartum.  I forgot to mention to my Dr.'s that I also fractured my pelvis when I was 20 (car accident).  The fracture was minor and stable and I didn't need surgery, but now I am concerned that I will need to have a C-Section. It's just so complicated and not at all how I though I would bring a life into the world.  I know it will all be worth it in the end, right?
On the plus side, I haven't had any clots since the incident, 14 years ago. I am a long distance runner and every other part of me is in good health.  I am trying to keep this in mind.  I just want what's best for my hopeful one-day baby.
Will someone please tell me some success stories? 
Thank you!

Re: May-Thurner and Factor V Leiden

  • I have no experience in either of those conditions but if you OB seems ok than that's great news. Obviously you will be high risk so just make sure you keep up with your OB and MFM and stay positive all will be OK. Good luck!!
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  • I don't have any experience with those things but I just want to throw out the perspective that a lot of girls are super young, healthy, and still end up with random problems and high risk.
    It is a scary leap to jump into motherhood but I feel like it is also the most amazing thing I have ever done.
    I hope if you go through with it that everything ends up boring and routine for you. Good luck!
  • I know many women with Factor V with healthy pregnancies. You know it before hand so it can be managed as possible.

    As for the pelvic fracture, don't worry. It's like having a broken leg the running again once it's healed. A pelvis fx is not a contraindication to a vaginal delivery. ESP if it was a non operable fx such as a pelvic rami fx.

    Good luck. You are doing all the right things by meeting w an OB and a specialist.
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