i hope it's ok to post this here, but I'm looking for some advice/words of wisdom from anyone who has maybe had a similar experience or can speak to how I'm feeling....
So just a little background, I gave birth to twin boys 8 1/2 weeks ago. I had severe preeclampsia and needed an emergency c section at 36 weeks, so they are 4 1/2weeks adjusted. NICU stay was short with only minor premie issues. Pregnancy was pretty smooth up until the end, however, Twin A was very low in my pelvis from very early on, they felt his head on my cervix as early as 16 weeks. Sure enough, he was born with torticollis/plagiocephaly because he was SO tight in utero. He basically grew mostly in my pelvic cavity. He is currently receiving PT for his neck and head.
I know he is only 2 months (1 month adjusted) but i already have some major concerns with his development. He has what I consider severe ankle clonus in both legs. I read it's normal for preemies to have some clonus due to an immature nervous system, but like 2-3 beats only. If I don't stop his legs, they will keep moving!! Of course I google and discover that's ankle clonus is almost always an abnormal outcome of a neurological disorder, often cerebral palsy. Now the PT says they are young and we just have to watch it, but I'm already losing so such sleep over what could be wrong with him. We have the 2 month well visit on Monday and I plan to talk to the pedi about it, but I know the answer will be the same. Not that I do think waiting is the smart thing to do, but if there is something wrong, then I feel like the sooner we know, the better. In addition to the clonus, he has a foot that is turned in, his legs look somewhat bowed, he is EXTREMELY colicky, and he sometimes (not always) has extremely rigid legs and feet.
I'm really trying not to be neurotic and jump the gun on anything, but I also want to be proactive. My husband and mother are so upset with me because I've consulted dr google instead of just waiting like the PT said. But considering what I found, I feel like its better to be informed and know what we may potentially be dealing with.
Has anyone had any experience with ankle clonus, CP, or any other neurological disorders that can give me some words of wisdom? I really appreciate anyone who took the time to read this. Like I said, my family upset with me for causing so much worry and I feel like I have nobody to talk to. This is all on top of post partum depression, so I am feeling extremely emotionally drained and my stress level is through the roof. I have to go back to work in 2 weeks and I am having anxiety attacks about that too!