Intro and Very Scared

74dragonfly · July 2013

Hi I hope this is the right place to post. Im 20w3d pregnant with a little boy. My Ob just called me with the results of our a/s. We had it Monday. They just took photos and sent them on to radiologist. Apparently the baby has a problem with his spine, spina bifida. All the other tests, nt scan and maternit21 were fine. Dr is surprised. She booked us with a specialist tomorrow morning. I'm so scared.

The Dr said everything else looked good.She said it was a good sign he was moving around so much.

I started to google. we dont know the extent of his issues so I dont want to get too scared. He has Myelomeningocele.

Please send me any good thoughts and prayers. I'm devastated. I cant lose my baby. I just want him to be able to have a normal healthy life.

staceymack · July 2013

I'm so sorry you're going through this. Sending prayers! Hopefully the specialist will have better news tomorrow!

Jfila13 · July 2013

Thoughts and prayers for you.

angelchild24 · July 2013

Thoughts and prayers for you!

I hope you get some better answers from the specialist.

Throw3ks · July 2013

Thinking of you an your family!

ilovetolaugh · July 2013

Prayers and positive thoughts coming your way. I hope you get some good, solid answers soon!

mlamping · July 2013

Best of luck and I will praying.

donnelly1000 · July 2013

I am thinking of you and sending lots of good thoughts your way. I am currently waiting for my final amnio results, as well as results for another scary syndrome i screened at risk for.
Waiting with such fear is very hard. I hope you have a great appointment tomorrow and that you get some peace.

And honestly, if you can stay away from google, it does help. I spent 2 days sobbing at work and finally have had to stop.

We can get through this. I know it and I am here with you.

Inn2 · July 2013

You are in my thoughts and prayers.

Cercamom2011 · July 2013

I'm sorry for such scary news. T&Ps to you.

kneenah1231 · July 2013

Sending you thoughts and prayers...

74dragonfly · July 2013

donnelly1000:
I am thinking of you and sending lots of good thoughts your way. I am currently waiting for my final amnio results, as well as results for another scary syndrome i screened at risk for.
Waiting with such fear is very hard. I hope you have a great appointment tomorrow and that you get some peace.

And honestly, if you can stay away from google, it does help. I spent 2 days sobbing at work and finally have had to stop.

We can get through this. I know it and I am here with you.

Thank you. I hope you get good news.

74dragonfly · July 2013

Thank you everyone for your T&P. I'll update when I know more.

DahliaFlower · July 2013

I am sorry to hear this very upsetting news. I can imagine how shocked and scared you are. Thoughts and prayers going your way, hoping baby will be healthy and that his myelomeningocele can be treated successfully.

zxifnswdjdfn · July 2013

Sending thoughts and prayers your way.

Boston41 · July 2013

Hi. I was just lurking here because I will be more high risk as my pregnancy progresses. Anyway, I have spina bifida and while it is hard not to worry, your baby can most definitely live a full healthy life. I'm 30 and I did have many surgeries as a baby and child and more in my 20s but I have lived a great life. I got married last year and we're expecting our first child in November. I did have a walking disability as a child and have had to use crutches and a wheelchair sice 20 years old but I'm happy and healthy.

I just wanted to give you some reassuring news and if you have any questions whatsoever, don't hesitate to ask.

Best of luck with everything!

Oh one last thing to add, don't treat your child differently. Push them to do things on their own. My parents alway did and I've always been a very independent motivated person. I thank them all the time for alway pushing me and convincing me I could do things when I thought I couldn't. I've met people with spina bifida my own age before whose parents would still do everything for them, even as an adult.

Again good luck, stay strong and stay positive. :

4Angel5 · July 2013

Boston41:
Hi. I was just lurking here because I will be more high risk as my pregnancy progresses. Anyway, I have spina bifida and while it is hard not to worry, your baby can most definitely live a full healthy life. I'm 30 and I did have many surgeries as a baby and child and more in my 20s but I have lived a great life. I got married last year and we're expecting our first child in November. I did have a walking disability as a child and have had to use crutches and a wheelchair sice 20 years old but I'm happy and healthy.

I just wanted to give you some reassuring news and if you have any questions whatsoever, don't hesitate to ask.

Best of luck with everything!

Oh one last thing to add, don't treat your child differently. Push them to do things on their own. My parents alway did and I've always been a very independent motivated person. I thank them all the time for alway pushing me and convincing me I could do things when I thought I couldn't. I've met people with spina bifida my own age before whose parents would still do everything for them, even as an adult.

Again good luck, stay strong and stay positive. :

What a powerful and inspiring reply. So glad you shared. It's a good perspective to have for any disabilities or challenges our babies might face. Thank you for sharing your story with us.

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