Ladies with Endo

Etta07 · July 2013

What were your signs and symptoms? How long did you go misdiagnosed? How long from first mention til you were able to confirm? And what was your treatment?

I just had an appt with my primary care today, it was different dr in the same practice and by far my favorite to this point. Before she asked me lay back for the exam, she was asking me about my history (that she actually looked up in my chart!!!) and then was asking about my current symptoms and situation and she mentioned that endometriosis might actually be to blame. Anyways we now have a referral in for a pelvic ultrasound and after that and for any more pelvic pain she wants me to go back to my OBGYN (which I spaced and forgot I could have called her on Fri). I looked up endo online and read the MayoClinic description so I understand why she is thinking this route I am just surprised she's the first dr looking for an answer and not just wanting to put me on meds (clomid) to get me pregnant. It makes me sad she won't be following through with my case.

Thank you for "listening" and sharing any personal experiences

Amores0121 · July 2013

I don't have endo, but may I ask what are your signs and symptoms that indicate you may have it? It runs in my family--my grandma, aunt and mom all had it, so I always have that in the back of my mind.

I am glad you finally found someone who seems to care about getting to the root of the problem, and who you like. I know you were not getting great care before. ((hugs))

buggirl72 · July 2013

My endo was not diagnosed until I had a diagnostic laproscopy. I've had 2 (maybe 3) surgical laps that dealt with cysts and removing the endo. My symptoms were not that severe and all tied in with my period.

toomanycats1 · July 2013

Endometriosis is tricky because the symptoms don't always indicate the level of severity. You can have lots of pain, and minor adhesions, or next to no pain/symptoms, and be full of Endo.

In my case, I was diagnosed with it when I was 26, but I had been struggling with intense pelvic pain for a few years before that. For me, my flare ups feel like my pelvis is under a lot of pressure, and I get stabbing pains towards my back. Think of your worst period cramps, and make a that a regular occurrence. Now that I'm charting, I realize that the pain is more severe with hormone fluctuations (beforeAF, before O, etc...), but it is very hard to predict and manage. Prior to my surgery I also had post-coital bleeding, and this was the primary reason I finally went to the doctor.

That said, surgery does help a lot. I haven't had surgery since 2006 because we were TTC, pregnant, and then attempting hormonal options to manage the pain until TTC again. I'm looking at having repeat surgery now that it appears the Endo is causing fertility issues. The pain I've gotten used to, and it's just a way of life. The laparoscopy fixed the post-coital bleeding for a long time, but it appears to now be creeping back again

Please be careful how much you research Endometriosis because there is a wealth of scary and misleading information out there. The doctor will be able to formally diagnose you with a laparoscopy and will then have more information specific to your case.

((Hugs))

EKGibs · July 2013

Ohhhh Dove chocolate is my favorite!

I went to a local OBGYN for 3 years telling him something was wrong with me (very heavy, super painful periods) while he told me that it was normal. I would soak through a super plus tampon & a jumbo pad like it was nothing. I would also have to take 4 ibuprophen at a time & would still cramp so bad I couldn't leave the house. I can remember missing school it was so bad. What's really bad is that my mom was afraid I would get hooked on pain meds if I took Tylenol for cramps so I would either have to sneak it or suffer through the pain.

I finally went to a new obgyn & told her all of my symptoms so she scheduled an ultrasound. After seeing cysts on the ultrasound & my symptoms she scheduled laparoscopy & removed 4 golfball size endometriomas from my ovaries. I did 6 months of Lupron to treat it. It worked somewhat since I got pregnant 6 months after I finished the injections (it ended up being ectopic).

Unfortunately, 2 years later I had another lap to remove some some endometriomas but it had spread to stage 4. My RE said he couldn't believe the extent of damage he saw when he got in there with the camera. He pretty much told me that at this point any treatment would just slow it down but the damage is done.

I strongly urge you to get it taken care of early if you suspect endo. Hopefully you have a mild case & have caught it early on.

Etta07 · July 2013

Amores0121:
I don't have endo, but may I ask what are your signs and symptoms that indicate you may have it?nbsp; It runs in my familymy grandma, aunt and mom all had it, so I always have that in the back of my mind.I am glad you finally found someone who seems to care about getting to the root of the problem, and who you like.nbsp; I know you were not getting great care before.nbsp; hugs

This dr I swear is the first in a long time who actually reviewed my file before talking to me, so she got to see all of my complaints that I've been in for before plus the reason for today's visit.

So my list of GYN complaints that have been brought up at different times is

Painful intercourse
Cysts
Random pelvic pain so bad I don't want to walk
I was diagnosed with PID 1 month post DnC but have never had chlamydia or gonorrhea
Diagnosed with IBS but there isn't a specific food that irritates it, it just comes and goes

She has a referral in for a pelvic ultra sound and if that shows more cysts I believe her next plan is a lap

Want a personalized experience?

Ladies with Endo

Re: Ladies with Endo

Choose Another Board

Search Boards