UPDATE!! Panorama still inconclusive. WTF.

Ktrue85 · June 2013

UPDATE: My doctor scheduled an appointment for me to meet with a genetic counselor on Thursday at 9am. They will run the Mat21 test on me. I am very satisfied with this, just wish they would have offered it to me two weeks ago after the first inconclusive Panorama.

Oh well, glad I pushed the issue. As always, I'll keep you ladies posted.

My panorama came back again inconclusive.

Are you kidding me?

They want me to do an amino which I am very against since being told I have an increase in the M/C risk. I've put a request in for a different test, like MaterniT21. We will see if they can order it. Waiting for a call back.

How utterly frustrating. Waiting over a month to know if our little boy has trisomy 18 or 13. Just seems cruel. I'm so tired of this crap.

Any suggestions? Or why the FCK are my test not yielding enough fetal DNA... I feel like that can't be good.

Wish I could have spoken to my doc, but they have to call me back.

notkateanymore · June 2013

{{{{}}}} I am so sorry. This really sucks. I hope you talk to your doc soon.

dbucks · June 2013

Dang, that is so incredibly frustrating! :[

I hope they are able to do the alternative testing you requested. Forcing an amnio doesn't sound fair at all.

esf60 · June 2013

frustrating and infuriating. let us know what the doc says!

Unknown · June 2013

Oh no! That is really frustrating :[ Hope you get some answers very soon!!

MrsQueale · June 2013

I can't imagine how frustrating this must be. I'll keep praying, hopefully all this run around was for nothing and you son will be very healthy. Take care.

megs2419 · June 2013

I am so sorry you are going through this. I hope you get to talk to your doctor soon.

SarahDavis83 · June 2013

I have no advice, but I'm so sorry you're going through this, KTrue. [[[[[hugs]]]]]

golfingdarwinfish · June 2013

That's absolutely ridiculous! I would try not to read too much into the fact that they haven't been able to extract enough fetal DNA.

So sorry you're going through this again. (((Creepy Internet hugs)))

KFED103 · June 2013

Ugh!!!! I'm sorry...so frustrating!!!!

JillSandm · June 2013

Ugh! Sounds so frustrating! I hope you can get some good answers soon. I firmly believe that knowledge is power.

Prayers...

swirl25 · June 2013

I am so sorry. I hope you can get an alternative test to the amnio and get answers ASAP.

adawn1981 · June 2013

I just can't believe that! WTF? I am so sorry that you are dealing with all of this stress. Hopefully they are able to do the Maternit21, give you good results and you won't have to worry about this again. Praying for you!

care99 · June 2013

I am so sorry! I am going through something very similar with Mat21, so I feel your pain. Hope they can do another test and expedite them!

BootsOrHearts · June 2013

That really sucks, I don't know what the heck is going on! I hope you can get with a doctor and get some answers.

hfitz · June 2013

I am so sorry you're going through such a difficult experience. Many good vibes to you and stay strong.

champhe · June 2013

I'm so sorry. That has to be incredibly annoying. I would not want to do the amnio either. I hope you can do the Mat21 and get answers soon!

jenohouston · June 2013

Ugh WTF? That is so frustrating. I hope they can try something else before they do an amino. I am so sorry and I am sending all the thoughts and prayers I can.

Ktrue85 · June 2013

Thank you, everybody. I am still waiting for a call back. The nurse earlier sure wasn't any help. I don't think she had even heard of Mat21.

At least I did have a wonderful U/S at 16w and baby looked perfect with no markers for trisomy 18 or 13. But still, I'd love to have a for sure to let my PGAL brain rest!

I will def keep you ladies posted. You're the bestestest.

okate0213 · June 2013

Ugh, how frustrating! Wtf! So sorry you are having so many hiccups with this seemly simple process. I hope they have some answers for you with doing the M21 test possibly. I would feel the same about the amino.

contacbb · June 2013

Hang in there! I am regurgitating some prior board post info, always a bad idea...but, I recall someone having not enough fetal DNA and that she was told it was because her liver processed things quickly. It seemed logical to some extent so maybe you can find out if that could be why you didn't have enough and you don't have to worry about that too!

jmb527 · June 2013

Ohhh Ktrue, I am so sorry this is happening and causing you such frustration. I hope you can speak to your Dr. and get more answers and get some solid info soon. I wish I had some suggestions to help. Hang in there, and hopefully you will get some answers very soon

zou bisou · June 2013

Eegads, this has been an eternity for you! I hope that ultrasound is a foreshadowing of the good news you'll be getting whenever the final results do come back.

amberpro · June 2013

OMEffingG, true!!! WTF? I'm so glad they are doing Mat21. Hopefully this can put your mind at ease once and for all.

AND my Mat21 was back in 6 business days. My dr said they are usually pretty quick.

[[[[hugs]]]]. Still sending positive thoughts your way.

RNmommyof2 · June 2013

At this point, I would probably opt for amnio. The genetic counselor told me the chance of miscarriage with CVS or amnio is lower than your risk of miscarriage on your own.

Want a personalized experience?

UPDATE!! Panorama still inconclusive. WTF.

Re: UPDATE!! Panorama still inconclusive. WTF.

Choose Another Board

Search Boards