MN Ladies

birdie_1010 · June 2013

Do any of you have any experience or knowledge about the feeding clinics at Children's Hospital, U of M or Gillette?

My youngest son (16 months) has barely grown in the past 7 months. We added pediasure, did a bunch of lab work, reviewed his diet and couldn't come up with a good solution for why he is not gaining as he seems to be a good eater (although it is getting worse all the time). My son's pediatrician recommended seeing a feeding clinic and an endocrinologist to rule out any health/diet related issues that may be affecting his growth and work through any behavioral issues that need addressing.

Right now I have appointments scheduled at all three places and need to make a decision about which appointments I am going to cancel. My thoughts so far:

Children's: They seem to have a very comprehensive team of people working with each patient; I have already filled out the paperwork and they reviewed it prior to scheduling his appointment; and they are a well established clinic in the area.

Gillette: We have had a really good experience with the other doctors and staff members that we see at for our middle son.

U of M: His pediatric neuropsych works out of the U and we are going to be adding a geneticist to the team from the U - it would be nice to have multiple services in one place; we love the U; and it is a new program which I like because it is new eyes.

My middle son did feeding therapy at Fraser which I don't think will be quite the right fit this time.

birdie_1010 · June 2013

Spockles:
We haven't gone to any of these feeding clinics, but we do see specialists at Children's. Honestly, I would take my child there vs. Gillette. DS had to see an orthopedist at Gillette and she really left a terrible taste in our mouths. He was born with a clubfoot and had it corrected at Gillette.
What kind of new program is the one at the U? Is it an autism program? If so, there was another parent in DS's autism day treatment program who looked into that since it was multidisciplinary but she got a bad vibe from it and it seemed more like a study.
A friend of mine had her daughter seen at Children's in Endocrinology and always says good things about it.
Sorry that I don't have any other information/help to give.

Thanks, Spockles that actually is helpful.

My gut is telling me to go to Children's for the feeding clinic. Of these three clinics (we have seen specialists at all three) the only one we had a bad experience with was children's. However that was a Dev. Ped. We have had an awesome experience with Gillette but we have only worked with their neurology and sleep medicine departments, so who knows about another department.

The U of M feeding clinic is for all sorts of different feeding issues (transition from tube, behavioral, FTT based upon motor delays, etc) and they have an OT, an SLP and a Registered Dietician on each team. It is a pretty new program, which I like and don't like.

And perhaps something flameful... I already have the paperwork done and sent in for Children's and I really don't want to do it all again for Gillette or the U. This is seriously swaying my decision....

Spockles · June 2013

Which Dev. Pedi did you see at Children's? DS sees McLellan and we've always had a good experience. However, the nursing staff is kind of hit or miss. lol. I'm a fan of following your gut. :-)

birdie_1010 · June 2013

We saw Dr. Moore when my oldest was first diagnosed. I told him that we both worked full time and he told me that we weren't going to be able to do that and have a kid that succeeded. I never went back to him.

Spockles · June 2013

Oh my gosh! How rude of him to say that and so unsupportive sounding.

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