Cysts on baby's kidneys..

j9mac14 · June 2013

Hi there,

I don't post a lot but do a lot of reading..I could use some help...

I have a beauitful 5 month old DD. Friday she was running a temp and throwing up. We brought her to the doctor who told us to bring her to the hospital. She's usually laughing and smiling and she was just laying there in a trance.

We brought her to the ER, they ran a bunch of tests and after throwing up everywhere and running a temp of 104.8 they found out she had a UTI. She was placed on antibiotics and we stayed overnight.

She's back to her giggly self now, eating and keeping it all down, no fever.

The pedi called this morning and told me she had an abnormal ultrasound and that they had found cysts in her right kidney. The left was fine. I had to call the urologist and make an appointment. I called and it takes 24-48 hours to review test results and to schedule one.

So now, my husband and I don't have many answers as to what this means, or what we may have to do. I'm trying really hard to just relax and wait and see.

Anyone else have this problem or know someone who has?

Thanks..

Jessica

fullfhope · June 2013

I do not have experience, I just wanted to extend a hug and wishes for that beautiful baby to be well. Hang in there mama.

stewz · June 2013

I'm so sorry that you are going through this. With that being said, I have a cyst on my kidney. When we first found it I was freaked out but it's been about 8 years now and I just get it checked out every year and the urologist says it's fine. He thinks that is has probably been there since birth. My aunt has one too and she has had no problems either. So, it could just be something that your LO has and could possibly cause her no problems at all. Hope that gives you some sort of comfort!

rockyrollgirl · June 2013

Also want to extend well wishes.

Shel79 · June 2013

One of my girls has something called multicystic dysplastic kidney syndrome, and one of her kidneys is basically full of cysts and is completely non-functioning. She was actually diagnosed in utero when I was about 23 weeks pregnant (twins mean LOTS of ultrasounds, which proved to be valuable in this case!). It is freaky to think that my daughter has a non-functioning organ, but the good news is that you can live a totally normal life with only one kidney. She is on a daily dose of amoxicillin to prevent UTIs or other infections, and she needs to get monthly ultrasounds and meet with a specialist to monitor the kidney. So far, it has shrunk to about half of the size it was when she was born, and they are hoping that it just shrinks to the point that it just goes away. If that happens, there is no more risk for infection or other issues!

If it turns out that your LO has something serious, remember that she CAN live a normal healthy life with one kidney. I've com to realize how lucky we are- some kids have issues with their hearts, lungs, brain.... If my daughter is going to have a problem organ, I'm blessed that it is her kidney. It is still scary, but it could be something far worse!

I'll be thinking of you, and hoping that it is something small and easily fixable!

j9mac14 · June 2013

Thanks everyone for your kind words...we've been assigned a urologist...just waiting for the appointment!

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