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Home Nursing Care?

preggersINschool25preggersINschool25 member
in Special Needs
I'm awful confused. How do you go about getting part time nursing hours? I'm looking to be able to get out a day or two a week so I can run errands or go on a date night. Grant has a g tube and gets bolus gravity feeds. He is on quite a few medications too. He is severely delayed developmentally. He is almost 16 months and unable to get into sitting himself and is has no mobility currently.

I called a nursing Pediatic service company and they said since I was looking for respite time I needed someone to give me wavier hours. They gave me a different company's number. That company told me to call the bureau of developmental disabilities. That bureau said that they didn't deal with that...

I'm lost. Please help me.


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Re: Home Nursing Care?

  • realisticdreamsrealisticdreams member
    It depends on your state..what state are you in?  Their are also different programs in each state, but here we have a medicaid waiver that has attendant and respite hours.  We are on the regular waiver but we had the option to switch to medical when P was cathing.  The people would have to be CNA's or LPN's I think and they had a list to chose from, etc.  

    I would try to find a disability resource center and go from there, but the respite care is a part of some medicaid waivers as well.

    ETA: in VA medicaid contracts all of the authorizations out to a 3rd party company so maybe that's what they meant, but still someone has to request them and that's who is handling our waiver, which we have different choices on as well.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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