Autopsy report

cawettig · May 2013

I received an email from my Dr about two weeks ago with Arianna's autopsy results. I wanted to come on here so many times and ask if anyone else had these issues also but honestly seeing all the advertising for babies on the side of the board and all over when I log in here just kills me. I pulled through it tonight caught up on some of the posts that I missed... cried a lot reading all of everyones struggles because I feel the same way you all do. Reading these posts makes me feel not alone, I hate how we are all feeling this pain but it lessons the alone feeling that I have. It makes me think someone else out there knows what I am going through and understands the day to day pain.

Back to the report, the dr said that there were a couple concerns... here is what he emailed me. (please let me know if anyone else has had these problems and what their dr is recommending for further pregnancies)

I have some interesting news about the postmortem examination. I just spoke with the pathologist moments ago. In addition to the very large abdominal wall defect, the baby had hypoplastic lungs (meaning underdeveloped lungs). This is probably a direct effect of the altered abdominal anatomy on the development of the lungs. Moreover, the placenta had several major abnormalities that are consistent with both inflammation and thrombus formation within the placental vasculature. The inflammation raises the question of a subclinical infection that caused injury to the placenta. The thrombus formation raises the question of a subclinical condition like antiphospolipid syndrome (which we will test for when you come for your postpartum appointment).

So..the final conclusion of the pathologist is that the baby's untimely death was due both to the severe anomaly plus the placental abnormalities.

Noethola · May 2013

We never got a reason for losing our little one, so I cannot be of help there. I hope that when you go in for your postpartum appointment your dr is able to answer a lot of your questions. I truly hope that the likelihood that it would happen again will be very low for you and you do not test positive for the syndrome!

MommytoAngel · May 2013

I know those results were hard to hear... I do wish I'd done the autopsy on John though. I didn't understand the answers it would give us and just did a chromosomal test. I think in the long run it will probably help you to have some answers to what happened... Many of us don't. :-/ And I hope you come back negative at your post delivery appt. hugs and healing thoughts sent your way!

jess123456 · May 2013

Hugs to you. Hearing this is not an easy thing I am sure but getting some answers could be really helpful. Our daughter passed away in September due to some fatal abnormalities as well. It is so heartbreaking. We met with a genetic counselor and found that to be very helpful because this was all very foreign to us at the time and sitting down and talking to someone who specializes in this helped answer the questions that we had. If you have the opportunity to do this, I highly recommend it.

In our case, they believe that it was just a fluke thing that happened from the beginning of conception and that we weren't able to spot this all until later. We have opted for additional testing on us too which is also something that you can do.

It's just awful and I wish there was something that I could say to help ease your pain but please know that you aren't alone and we are always here for. You are in my thoughts and prayers.

Also on a side note, I believe that if you log in via mobile device you won't see the ads especially if you have a bookmark for just this particular board. I could be wrong but it is worth a try. I agree that it is very hurtful.

cawettig · May 2013

We had every single test done that was available also when we found out Arianna had an omphalocele. We found out at a genetic screening ultrasound at 13 weeks. When we had an ultrasound done at 12 weeks when we lost her twin she didn't have the omphalocele. The omphalocele was her liver and her intestines in a sac outside of her belly. They told us that our genetic testing was negative and it was also a fluke thing that happened. They were going to be able to fix her when she was born, after she was born the Dr told me that it was the largest omphalocele that he had seen.

Some days I get so angry how we tried so hard went through so many tests, had three fetal echos to check her heart, met with specialty drs and surgeons. How could this happen?? We were so prepared for when she came. I get so angry also that so many women take having a healthy pregnancy with no complications and a healthy baby being born and being able to hold their warm baby and be able to see the color of the babies eyes and being able to hear the baby cry.... I'm sorry I am rambling on and on.

It just hurts thinking of how hard I worked for her, I was so sick and going into premature labor constantly. I had to take so many meds to stop the contractions at home. It was not only emotionally draining worrying about her omphalocele but also so physically hard.

shandorfml2 · May 2013

So hard. Glad they might be able to figure out what happened and how to prevent it next time. I can also understand feeling frustrated with having all the extra u/s and stress tests cawettig, we had numerous ultrasounds and stress tests at the end, and everything was fine. Her heart just stopped for no known reason.

Sending lots of love to all us loss Mommies

bunnybun4 · May 2013

cawettig:
We had every single test done that was available also when we found out Arianna had an omphalocele. We found out at a genetic screening ultrasound at 13 weeks. When we had an ultrasound done at 12 weeks when we lost her twin she didn't have the omphalocele. The omphalocele was her liver and her intestines in a sac outside of her belly. They told us that our genetic testing was negative and it was also a fluke thing that happened. They were going to be able to fix her when she was born, after she was born the Dr told me that it was the largest omphalocele that he had seen.
Some days I get so angry how we tried so hard went through so many tests, had three fetal echos to check her heart, met with specialty drs and surgeons. How could this happen?? We were so prepared for when she came. I get so angry also that so many women take having a healthy pregnancy with no complications and a healthy baby being born and being able to hold their warm baby and be able to see the color of the babies eyes and being able to hear the baby cry.... I'm sorry I am rambling on and on.
It just hurts thinking of how hard I worked for her, I was so sick and going into premature labor constantly. I had to take so many meds to stop the contractions at home. It was not only emotionally draining worrying about her omphalocele but also so physically hard.

so many ((HUGS))...I am right there with you with the anger...and I think it is the worst feeling in the world. I just don't get how some women have no complications and have healthy baby after healthy baby. I am so sorry you are going thru this.

alpinemomma · May 2013

Same with our late son, Bodo.
A mystery that we will never know.

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