I know I have been the worst updater probably to history, and just want you all to know how much i appreciate your support and well wishes. I had plans to update along the way, but some days just came and went without me even knowing it seems. Our nicu journey is coming to the end thankfully, its been 46 days so far and it is looking like Saturday will be the day we get to take our little girl home, granted she behaves and doesn't have any episodes!
We have had our shares of ups and downs, with the CMV exposure, a very mild grade I IVH and now most recently an abnormal brain MRI. I guess this was to be expected with the CMV, it just is upsetting that we don't know what the future holds for Evelyn. They are unable to give us any true prognosis as "every case is different" and we will just have to "wait and see" as they keep saying. The only thing i do know is that she has captured our hearts completely. She is a good eater, sleeps on her schedule and is gaining weight! 4 lbs 5 oz now. She has big beautiful eyes and a head full of hair, and soon will be home with us. Thursday is the hearing test, a big day for us as almost 60% of babies with congenital CMV have some sort of hearing loss either partial or complete. The test they do in the NICU is more advanced than the normal newborn exam and we will know immediately if she has hearing loss. So fingers crossed for some good news! I am trying to attach pics, Jen I may need your help with this if they don't load