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***azdcpa0912*** Williams Syndrome

luckyfrggluckyfrgg member
in Special Needs

Hi there!  I don't frequent the board much these days (life gets busy) but I was scrolling through old posts and saw your DS recently received a WS diagnosis.  I have a 4 year old daughter with WS, and another board mama who is similarly busy with life (Akimbo) has a 6 year old son with WS.  

Happy to chat anytime about life with WS and especially about surviving that infancy time - it's tough but it gets SO SO SO much better!!  I can put you in touch with Akimbo too, and a bunch of other WS moms.  There's a great Facebook group you should join when you're ready.

Hang in there.  Respond here if you want and we can exchange emails by PM.  :)

*hug* Jen 

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Re: ***azdcpa0912*** Williams Syndrome

  • akimboakimbo

    Akimbo here - happy to talk about anything if you'd like. There are no questions too personal and what Jen said is so SO true. Not only does it get so much better - it gets good!

     

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  • realisticdreamsrealisticdreams member
    Also, azdcpa0912, I just saw your PM, I sent your info to my friend whose daughter has WS, sorry it took me so long, I never check them!!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • Mrs. StewMrs. Stew member
    I'm never ever on here anymore, but my daughter also has WS.  She's 20 months.  Feel free to PM me with your email or FB name if you want to get connected.  Big big hugs!
    Married 7.5.08
    BFP 12/10/10 - DD1 8/16/11
    BFP 10/29/13 - c/p 11/2/13
    BFP 11/29/13 - DD2 7/18/14
    BFP 3/20/18 - DS1 due 12/2/18
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