Paging grbnik

Re: Paging grbnik

• heedy07 member

  May 2013

  I am interested, too.  I never got back to you before, but yes, I am in Iowa and would love to talk more to you. My DS (21 months) has had a one hour EEG and is scheduled to have a 24 hour EEG at Mercy on May 14th.  We also see several specialists including genetics in Iowa City. Are you in the DSM Nestie FB group? 

  ETA: I just read your post from last week, and if you want to email me, my email is heedy07@aol.com. I would be willing to chat on FB or on the phone, too, just let me know. Seizures are so scary Are they getting an MRI? They would have to sedate her, but we had an MRI and EEG with DS and the MRI came back with a finding that we are now seeing a neurosurgeon in Iowa City for. 

  K, born 05/06/10 B, born with a few surprises 07/20/11  

  
  

  
  

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