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xp: Hypoplasia/Insufficient Glandular Tissue

angelaann15angelaann15 member
in Breastfeeding

 I originally posted this on the 0-3 board but you all might have more feedback.

Has anyone had this? I have had supply issues from the beginning and thought it was because I either wasn't pumping enough, eating enough or drinking enough. After doing some research, I have come across Hypoplasia/Insufficient Glandular Tissue. Some of the characteristics I am experiencing are:

breast asymmetry (one breast is significantly larger than the other)presence of stretch marks on the breasts, in absence of breast growth,tubular breast shape (?empty sac? appearance)absence of breast changes in pregnancy, postpartum, or both

I have had all of this and my breasts did not grow at all during pregnancy or when my milk came in. So...Before I give up and call it quits, I'm just wondering if anyone else has had any experience with this and what did you do?

And...would you keep pumping 10-12 times a day with 3 power pumps to only make 1 bottle of breast milk a day. I keep going back and forth and can't decide if that one bottle is worth it for all of the time spent pumping. TIA!

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Re: xp: Hypoplasia/Insufficient Glandular Tissue

  • tokenhosertokenhoser member

    Have you consulted with a lactation consultant? If you think this is you, I would try to get a professional diagnosis.

    I wouldn't spend that kind of time pumping for one bottle. I would seek donor milk from Human Milk 4 Human Babies (search them + your city on Facebook) if breastmilk was important to me. If you enjoy nursing, you could offer donor milk via a SNS at some feeds. I can't imagine you enjoy that level of pumping - it sounds exhausting! 

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  • angelaann15angelaann15 member
    imagetokenhoser:

    Have you consulted with a lactation consultant? If you think this is you, I would try to get a professional diagnosis.

    I wouldn't spend that kind of time pumping for one bottle. I would seek donor milk from Human Milk 4 Human Babies (search them + your city on Facebook) if breastmilk was important to me. If you enjoy nursing, you could offer donor milk via a SNS at some feeds. I can't imagine you enjoy that level of pumping - it sounds exhausting! 

    It is really exhausting but I keep waiting for my supply to come up. I have seen a few LC and they always have the same advice. It's maddening, pump more, eat more, drink more.

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  • tokenhosertokenhoser member
    I'd go in a different direction, then, and talk to a LLL leader or look for a doctor recommendation (there are a few that are great for breastfeeding, you just have to find them). It does sound like you have an underlying issue, either tissue or hormonal, and it's unlikely you can fix it yourself no matter how hard you try. You've done everything you can and you're a GREAT mom for putting in the effort. It's so frustrating when you do everything right and it doesn't pay off.
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  • jess9802jess9802 member

    I do not have any personal experience with this, but one of my best friends did. She never got more than drops of milk at a time despite round the clock pumping.  An LC finally told her that it appeared she never developed breast tissue during puberty and would not be able to breastfeed. She switched to formula at about 2 or 3 weeks.  It was very upsetting to her, and she was angry that she'd never been told that some women will not make enough milk.

    In the early days of breastfeeding I managed an exhausting pumping schedule for these reasons: (1) I wanted to breastfeed and baby needed time to learn to latch and transfer milk; (2) I had more than enough milk and didn't need to supplement with formula to meet his needs; (3) It was a temporary situation. Had I been facing an extremely low supply that was not responding to pumping/nursing, the possibility that my supply would never increase short of medication like domperidone or Reglan (neither of which I was comfortable with), and that I'd be exclusively pumping for a year, I would have called it quits and enjoyed formula feeding my baby.

    I am sorry you feel conflicted about this. If you haven't, please see a lactation consultant, and whatever you decide, remember that your baby needs YOU more than s/he needs breastmilk. 

     

     

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