Not doing well (vent)
nomadica
member
When DS was diagnosed 2 years ago, he had language delays and social delays, but not repetitive behaviors or unusual play. It was devastating when he was diagnosed with PDD-NOS, but I think I took some comfort in that maybe he really just has a "social communication disorder", and not "real" autism. I know that was denial. Anyway, in the past month or so he's starting to demonstrate a lot more concerning behaviors- drawing the same figure over and over, strange play with his building toys, lots of echolalia and scripting, even eating non-food substances. He definitely meets criteria for autism now. For some reason, I feel as devastated as I did when we first realized something was wrong. It's stupid and I should have been prepared for this, but I guess I wasn't. One boy at his daycare even said to me today "Why does he like to copy people?", and it killed me to know his peers are starting to notice he is different.
Just venting and feeling incredibly sad:(
Re: Not doing well (vent)
((hugs)) When you have a child with an undefined or "spectrum-of-outcomes" diagnosis, you have to walk a fine line between optimism and denial. You want to hope for the best and prepare them for the best possible outcome. But when that outcome does not happen, it's a big punch in the gut. And you ask yourself if you were in denial, but I don't think that is a fair question. Every one of us hopes for the best outcome for our child. And it hurts when we have to "go in for an alignment" to adjust what the possible outcomes might be.
Thinking of you and wishing you peace.
Hugs.
I had a 'realignment' this week as well. It sucks. Alot.
You get so excited about the small gains, they start to brainwash you until either someone or a 'come to jesus' event throws a big bucket of cold water on you.
Nate was evaluated for vision at school this week. He has been diagnosed as borderline low-vision either 20/70 or 20/100....this is not something that can be fixed with glasses. It is how the brain is processing the information......perhaps our school for the deaf isn't the right placement....getting all of his main lessons visually via sign language may not be good...now were the f do we go? ***cue ice water***
Hugs right back to you- that is very tough news to hear:(
They *seem* to be willing to work with us. We are going to meet with some of the admissions people at the end of May and discuss our plan further.They are also having the schools behavior therapist evaluating himper my request. :>
{{hugs}}
This resonates with me. We're already having a crappy weekend and DH says to me earlier that he felt a little bummed because Chris doesn't seem to be doing any better than he did at the start of the school year. I said to him what auntie mentioned before - that his delays would become more noticeable as he got older. Where I clung to the PDD-NOS not quite autism liferaft for a while, there is no doubt anymore that Chris has ASD and I might even question the mild part of his range (mild to moderate). Of course maybe I'm attributing what I think might end up being ADHD to ASD but irrespective it's a hard bitter pill to swallow.
Vent away. We've been there. {{hugs}}