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CCRM consult *UPDATED*

BrideJackie11BrideJackie11 member
in Infertility Veterans

Hey ladies,  my CCRM consult is tomorrow evening with Dr. Surrey. We are basically trying to get a second opinion and make sure we are on the right track.  I know there are several of you who have done a phone consult with CCRM. Any advice?

UPDATE:  Spoke with Dr. Surrey for about 35 minutes.  He is very nice and knowledgable.  He recommended us continue with our frozen embryos with our current RE for as long as we wish.  We can't to CCS on our embies because we didn't do ICSI.  He is hoping that he won't be needed in the future.  If after multiple failures (which hopefully won't happen), he recommends we come to CCRM and do another fresh cycle with CCS to screen out genetically abnormal embryos.  Other topics covered:

1. We spoke about Fragile X.  He doesn't think that we should do PGD because my number of repeats is below 50 (48) and the error rate may be higher and normal embryos may end up getting wasted. 

2. I asked about his opinion on neupogen.  He said he spoke with the REs in NY who are doing research on it.  He has done it on approximately 20 patients and didn't see any improvement.  He is not a big fan but would do it if we wanted.

3. Other options for my lining include adding low-dose gonal-f or menopur without doing estrogen and inducing ovulation so my body makes its own estrogen.  This would be similar to our fresh cycle when my lining got up to 7mm.

Overall, it was a productive second opinion. He spoke highly of my RE which is comforting.  Hopefully, we will be sending him a birth announcement instead of heading out to Colorado for a cycle.

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Married June 2011 Dx: anovulatory due to prolactinoma (1.5cmx 1.5cm in 2006)
April 2012: MRI- questionable cyst 8mg by 12mm in pituitary ; referred to RE by Ob-gyn after amenorrhea x 4+ months, provera ineffective, low estrogen level
cycle 1: May 2012, clomid 50mg; cycle cancelled, thin lining, no response
cycle 2: June 2012, femara 5mg; cycle cancelled, no response
cycle 3: July 2012, femara 7.5mg; cycle cancelled (largest folli on Cd12 & cd 16: 11, lining 4)
Repeat MRI July 25,2012- Cyst unchanged, likely old infarction.
Aug. 8: met with RE, move to injectables if HSG and SA normal
Aug. 23: HSG all clear; DH- perfect
Switched to a new RE in early Sept. IVF here we come
Genetic testing reveals: Fragile X- Intermediate risk/grey zone.
IVF#1: ER 11/30: 14 retrieved, 10 mature, 7 fertilized. E2 prior to trigger 5200. Decision made to freeze 6 embryos and transfer later due to OHSS.
IVF#1.2/FET #1: estrogen injects start 1/18, FET delayed to try to thicken lining. lining 5.4mm. FET- 2/18- transferred one 3AA expanded blast. BFP 5dp5dt. Beta #1- 2/27 9dp5dt- 102.27 beta #2 3/1: 147 :(, beta #3 3/4: 268 told to stop meds and let nature take its course. requested 4th beta (3/6); Beta hell for 2 months.

FET # 2: endometrial scratch 5/6, added estrace vaginally and ASA to delestrogen and PIO. June 10- transferred one 4AA hatched embryo, BFP 4dp6dt, Beta 1 (9dp6dt) 187, Beta 2 (11dp6dt): 412; Beta 3 (15dp6dt ): 4452. U/S #1- one beautiful embryo with a heartbeat of 133 at 7 weeks.  8 weeks: heartbeat 156. EDD 2/26/2014: born 2-3-14 induced due to Pre-E and HELLP at 36w5d.

12/1: met with RE to discuss trying for #2


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Re: CCRM consult *UPDATED*

  • Crystal120410Crystal120410 member
    No advice but good luck!
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  • rockpaperloverockpaperlove member
    I would only suggest writing down your questions needing anwers in some order of flow from past to present to future. The floor is yours! My experience was that! Good luck and best wishes!

    Countless BFN(s)
    Moving to IVF

    IVF1 (ICSI): Long Lupron
    6R. 3F. 3DT. 8Cell 1Grade 2Embies. 1Frostie.
    Beta 1/22: 14 Beta 1/24: 24 Beta 1/26: 28
    Round One Result: Chemical Pregnancy

    Pressing Forward

    IVF2 (ICSI/AH/ACU): Microdose Lupron Flare
    13R. 11F. 5DT. 2TFR'ed. 1Frostie.
    Round Two Result 4/30: Harsh BFN

    FET. 2TFR'ed.
    Round Three Result 6/25: BFN
    Where do we go from here?

    Moving forward with CCRM in 2013
    ODWU revealed blocked tube(s). Lap 2/15.
    Bilateral Tubal Ligation. Stage IV Endo.
    Finally some (tough) answers.


    IVF3 (ICSI/CCS): Antagonist with EPP
    13R. We have 3 CCS Normal Embryos!


    Lupron Depot: May 2013 to August 2013
    Long awaited FET on 9/3. 2TFR'ed.
    BFP on FRER 5dp5dt: IN SHOCK!
    Beta1 9/10: 152.7! Beta2 9/12: 378! Beta3 9/14: 1224! 

    1st ultrasound 10/1: TWO beautiful heartbeats!  Overjoyed!

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  • jschwind22jschwind22 member
    No advice, but good luck!
    My Blog
    Lilypie First Birthday tickers

    TTC #1 since February 2011
    Me: 29 (3/5/13- high NK cells)  DH: 28 (5/8/12- MFI low morph and motility)
    Cycle #21 (IUI#1), Cycle #22 (HSG 9/21/12) and Cycle #23 (IUI#2)=  image
    Cycle #24- December Snow Bunny IVF #1
    ER 12/6/12 (14R, 11M, 9F), ET 12/9/12 transferred 2 day 3 embies
    Bleeding and low betas=very cautious image C/P 5W3D
    Cycle #26 March Lucky Duck- FET #1
    scheduled 3/20/13- CANCELLED- lining issues
    Cycle #27 May Emerald- FET #1.2
    delayed- Starting Trental for 3 months + natural cycles Cycle #28-30=  image
    Cycle #31 August Shooting Star- FET #1.3 
    transferred 1 hatching blast 8/21/13= imageBetas 8/30 (108) and 9/3 (565)

    U/S 9/19/13- HR is 128!  U/S #2 10/4/13- HR is 174!
    It's a BOY!

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  • liz4pawsliz4paws member
    I've never talked to CCRM but am hoping everything goes great! Good luck!

    ************ Signature/Ticker Warning ************
     Me (32) DH (36) - Finding our way to baby #1
     Me: POF/DOR - AMH <0.16, heterozygous c677t MTHFR, insulin resistant and gluten intolerant
     DH: Severe MFI

     12/2/11 - IUI #1- BFN 
    8/1/12 - IVF #1 - Zero response from max stims (600iu intramuscularly)
    My ovaries are just for decoration

     12/6/12 - Adopted five embryos that had been frozen for over ten years!
     2/11/13 - DEmbryo FET #1 Thawed four, sadly two didn't survive. Transferred two beautiful blasts. 
     2/16/13 - First BFP of my life @ 6dp5dt! EDD 10/30/13
     3/27/13 - After beta and u/s hell, no heartbeat ever detected. D&C at 9w1d.

    6/5/13 - Adopted four new embryos that had been frozen for seven years!      
    9/12/13 - DEmbryo FET #2. Thawed and transferred two beautiful blasts
    9/17/13 - BFP @ 5dp6dt! EDD 05/31/14
     9/29/13 - m/c @ 5w1d. :(

    11/19/13 - DEmbryo FET #3. Thawed and transferred one blast from each batch. Wow!
     11/23/13 - BFP @ 4dp6dt! EDD 8/7/13
    Beta #1 @ 13dp6dt - 522  Beta #2 @ 16dp6dt - 1373 
    6w5d ultrasound showed one perfect baby with a beautiful heartbeat of 134bpm!

    Snowflake baby is a girl! 
    Our beautiful Snowflake girl arrived on July 22, 2014!   
     My embryo adoption blog: Wishing on a Snowflake
      
        image      image 
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  • mm29mm29 member
    imagerockpaperlove:
    I would only suggest writing down your questions needing anwers in some order of flow from past to present to future.
    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015

    http://icanhazbabyz.blogspot.com/
    imageimage image 
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