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October 2011 Moms
Scramblersmom
member
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Ladies I have something to say
Scramblersmom
member
I have mentioned many, many times on this board that I have an auto-inflammatory disorder which is extremely painful and is causing severe damage to my back as well as my ribs, shoulders, knees, hips and ankles. It is not a merely a sore back. I also don?t feel that I need to mention it over and over when I have made this very clear. Over the last month I have not been able to get my disease under control and I have lost some flexibility in my back to the point where my physical therapist has had to modify all of my exercises because I can no longer do the ones I had. He also told me that I can not even do much in the way of lifting, exercise, etc. while I am on the steroids as it could cause further damage. The pain is still intense despite injecting $2200/mo. immune suppressing drugs into my body and going on round after round of steroids. I have been on prednisone for the last 11 days and my flare up has still not subsided. I have also visited the PT twice this week for pain management.
What this means to me on a day to day basis is that I can not always physically handle my son. It is beyond heart breaking and depressing when my son is crying and the best I can do is rub his back because I do not have the physical capabilities to lift him up. There are days when I just want to play with him but he wants to be running around and I can?t do it. Today, while we were in the car, I reached out to give him his pacifier and ended up damaging my ribs doing so. This means that I will be unable to lift my son for the next several days until my ribs heal. The pain is so intense at times in my ribs that breathing makes me want to cry.
All of this means that it is often extremely difficult for me to get DS in and out of the car and DH isn?t always around to help. The lifting, bending, and twisting that I have to do to get him in a rear facing car seat in a Toyota is extremely painful and is contributing to the damage to my body. Some days it is enough that it lays me up for a few days and those are days which take away from me fully enjoying being with my son. DH is not always available to put DS in his seat and take him out for me. If I am alone with DS I will not run errands just because I often can?t manage taking him in and out of his seat repetitively. It does depend on the day but over the last month it has been beyond difficult to say the least. It is not as straightforward as ignoring science, ignoring the AAP and whatever has else has been suggested.
I tried to share with you what DS?s pedi said and I couldn?t even do that without being mocked, getting an eye roll, receiving nasty comments and whatever else some felt like dishing out. I really don?t feel that I said anything nasty about this board except that a war breaks out when this topic is brought up and it is nice to actually be able to have a conversation about it instead. Those ladies on the "Parenting Over 35" board were a lot more accommodating and understanding. Many felt that it wasn?t that big of a deal to turn DS FF if I really had to. Others actually recommended car seats that had a lower profile or that pivoted on its base, both of which could be extremely helpful, and may allow me to keep DS RF for longer. I don?t recall receiving such helpful suggestions on this topic from this board. I care very much about DS?s safety and this is why this topic weighs so heavily on my mind and I am having a very hard time with it. I love my son and I would feel horrible if anything ever happened to him.
Anyway, this is all I have to say on the topic from here on out. I am not looking for a pity party, but it would be nice if people were helpful, instead of being so quick to be nasty and pass judgment, without considering the whole story or that there may be more going on. I have nothing more to say about this topic and I am done with this particular discussion. Carry On.
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This discussion has been closed.
Re: Ladies I have something to say
I'm sorry you're in pain.
You don't need our permission to make decisions for your family.
However, I just wanted to say that I am sorry you are dealing with this. Dealing with a chronic condition sucks.
Smit, you have been thinking about turning him forward at 18 months for a while now. I asked a question on here because I was unsure about FF a few months ago and though most of the responses were helpful, I definitely noticed a kind of frothing at the
You should have thought of that before you got pregnant.
Kidding. Totally kidding. I'm sorry you're in pain, absolutely. I do know that about you. I don't actually take
Smit, I do feel bad that you are in pain. I can only imagine how difficult that must be for you, and I hope things improve for you soon. You need to do whats best for your family. At the end of the day you are the one living with it so it doesn't matte
Word!! I'm sorry you are dealing wi
&nbs
Prayers for you Smit. Do what's best for your family. Try not to let guilt be there to make you second guess things. Make the decisions you need to make based on the information you are given and the people in your real life. Th
Thanks everyone so much. I am snotty nose and teary eyed over this. I guess because I am over 35 I am less judgmental over it than most, and I know it can be hard too, but then like I said on the +35 page, I always come back to #3 and #5. I always
IMO those few months do matter. The recommendation of RFing until age two is really the minimum. It's my understanding that the spine doesn't ossify until closer to 4 so the longer they RF the better. It's not like the spine magically hardens at exactl
I'm so sorry you are going through this all. Although, I can't for the life of me ever remember you mentioning (to this severity) before. I'm usually pretty active around here, so I can't figure out why. I am pro-extended RFing. I have never tried to h