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VSD needing surgical repair?

May4BabyMay4Baby member
in Special Needs
My three week old son has a large VSD that will need surgical repair. We're just beginning to learn more and go for our follow up next week. Is anyone else going through this or have had the surgery already? I'm looking for insight to calm my nerves. Thanks!
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Re: VSD needing surgical repair?

  • goldenleavesgoldenleaves member

    My daughter had an AVSD (atrioventricular septal defect) and it was repaired during open heart surgery at 6 weeks old. There are a few other heart mama's here!

    My advice is to look at pictures (if you think you can) of other babies post-op. I did

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  • May4BabyMay4Baby member
    Thank you so much! I will definitely check out your blog, it is exactly what I was looking for. How was it determined to do the surgery at six weeks? Our cardiologist said six months, but I'm not sure I can wait that long if there's no need to. Thanks aga
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  • May4BabyMay4Baby member
    His symptoms are rapid heart rate and breathing (sporadically), heart murmur (the reason we were sent to cardiology in the first place) and he's slow to gain weight. He's a very sleepy eater and ebf so that's my number one priority for now. No supplementi
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  • aiche Umm Ayoubaiche Umm Ayoub member

    I was born with VSD and aortic couration (narrow valve) also pulmonary valve sensoies ( narrow and leaking )

    my VSD was repaired when I was 2 years old I am now 34 years old  my valves are giving me some issues but that is due to me being v

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  • UnknownUnknown

    My daughter just celebrated her one year OHS anniversary on Friday :)  She had a large VSD patched.

     

    Iz went into congestive heart failure at two months old.  Medications helped with her symptoms--she was on Lasix and Aldact

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