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Tough week for us...

laurdinglaurding member
in Special Needs

We found out last week that our DD may have dystroglycanopathy, which is a form of muscular dystrophy.  We will find out at the end of the month when a blood test comes back. 

 

I know many of you have gone through tough times with dx and I just wanted to share on here because I have a feeling we will be in need of some support in the upcoming weeks/months, etc. 

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