Parenting after a Loss

*sig warning XP: Mat21 results: trisomy 13

***sig warning*** 

Im hoping this is alright to post here. I XP'd on PgAL and Oct 2013. I guess I'm looking for success stories, suggestions, experiences etc. Thank you in advance.

 

 

I am in complete and utter shock. My dr called with results which show trisomy 13.  DH and I are home from work trying to make sense of it all.  Shocked, sad, terrified, pissed...you name it; we're feeling it.  My dr says it appears mosaic so I'm hunting for success stories and severity of this type. Although everything I see just doesn't look good. I just can't believe I'm posting this. Our little BOY has trisomy 13.  Yes, I found out it was a boy. :,( 

Our parents know the jist, but are coming over tonight so we can give them the information we were given.  I go tomorrow at 3:15 for an amino to find which defects exist and to what severity.  I'm pretty sure we have to wait on the results but at least the test is being performed tomorrow.

Has anyone been through this result with any type of success story or even suggestions on coping? 

im asking for any prayers you can spare for our little boy.  He's only just under 15 weeks and I'm hoping and praying for some sort of miracle. Thank you. 

Lilypie - (dLe1)

 

      ***BFP 1-22-13, baby boy dx with Trisomy 13 at 15 weeks.

       We let him go to Heaven on 4-27-13 at 17 weeks 1 day***

 Lilypie - (AW2u)
 

 Lilypie - (L84X)Lilypie - (D4Hj)

 

 

 

 

Re: *sig warning XP: Mat21 results: trisomy 13

  • I'm sorry I have no advice, just some thoughts and prayers. Big Hugs!!
    Daisypath Happy Birthday tickers Lilypie First Birthday tickers Daisypath Anniversary tickers Image and video hosting by TinyPic
  • Loading the player...
  • ((huge hugs))  I'm sorry, I don't have any advice.  Many T&Ps headed to you, your family and especially your little boy! 
    Baby Birthday Ticker Ticker 

    Baby Birthday Ticker Ticker
  • I am so so sorry!!!! Lots of prayers for a miracle!!!! {{HUGS}}
    ~Formerly~AngnShaun~

    ~~Transferred 2 Perfect Embryos 5/28 - BFP 6/4~~ HAILEY ELIZABETH ~2/16/13~ 6:39am ~ 6lbs 2oz ~ 20" long ~ 1 Year ~ 20lbs 14oz ~ 29.25"~
    ~10.10 Ectopic, 4.11 Nat m/c 9w, 8.11, 1.12, 3.12 CPs~

    Follow Me on Pinterest

    Angela's book recommendations, liked quotes, book clubs, book trivia, book lists (100-in-2012 shelf)
    imageimage

  • Mmm79Mmm79 member

    Oh, hon I am so sorry.  What shocking news.  

    I don't know anything about Trisomy 13, but did have a younger sibling born with Trisomy 22.  I'd be happy to relay any information on her life if that would be at all helpful.  </

    Image and video hosting by TinyPic View Full Size Image
    BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
    BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12 
    BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13






  • ((big hugs))

     

    Image and video hosting by TinyPic
    Baby Birthday Ticker TickerBaby Birthday Ticker Ticker


    Baby Birthday Ticker Ticker
  • Oh my gosh, Quig, I can't believe it. I am so so sorry. Biggest (((((HUGS)))))) ever. 
    Baby Birthday Ticker Ticker
    Image and video hosting by TinyPicImage and video hosting by TinyPicImage and video hosting by TinyPic
    My Blog: One Emerald
    BFP#1: 9-13-11 EDD: 5-26-12 MMC: 11-4-11 D&C: 11-8-11
    BFP#2: 7-6-12 Elizabeth Faye ("Zuzu") born 3-21-13
  • Lots of ((((hugs)))).  I have no advice, but you and your LO are in my prayers.  
    BFP#1 4/17/10...EDD 1/6/11...M/C 5/28/10 BFP#2 11/19/10...EDD 8/4/11 Squeaker born 7/30.
  • I am so sorry Quigley. Sending you lots of thoughts and prayers for your family and baby boy. :::hugs::::
    Lilypie First Birthday tickers
    BFP #1 6.19.11 ~ EDD 2.23.12 ~ CP on 6.22.11
    BFP #2 7.23.11 ~ EDD 3.28.12 ~ MC on 8.16.11
    BFP #3 11.17.11~ EDD 7.31.12 ~ MC on 1.18.12
    BFP #4 4.12.12 ~ EDD 12.25.12~ Born on 12.26.12
  • Big hug, lots of Ts&Ps for you tomorrow, I'm sure tonight will be a long night.  Just remember the recommendation is to confirm all abnormal Maternity21 tests with an amnio becuase free fetal DNA is still an emerging technology, unfortunately you

    Baby Birthday Ticker Ticker

    Baby Birthday Ticker Ticker

    BFP#1 10 wk missed mc      

    BFP#2 DS born at 40+2 on 8/14/12  BFP#3 DD Born at 39+3 on 5/13/14

  • No advice, just big hugs, I'm so sorry you're going through this.
    Lilypie Angel and Memorial tickers 

    CafeMom Tickers

    Married the love of my life 7/11/09 - Our first baby, Peyton Mark, was born sleeping 10/25/11 at 33 weeks - Our second baby, BFP 2/4/12, welcome to the world Raylan! Holy Moly, BPF 2/4/14, please be safe and sound little one!

    My Blog

  • Sending you T and Ps. I hope the amnio brings the best possible news. Hugs

    BFP: 7/5/10   EDD: 3/13/11  Miscarriage 8/1/10 at 8 weeks

    BFP: 10/30/10   EDD: 7/7/11   Born 7/11//11 7lb12oz, 20 in.

    BFP: 7/30/13  EDD: 4/9/14 Born right on time on his due date! 8lb10oz, 21.5 in.


    Lilypie Fourth Birthday tickers
    Lilypie First Birthday tickers
    Awesome prophetic fortune cookie: Love is a present that can be given every single day you live

  • morkmork member
    I don't have any experience or knowledge to share, just ::BIG HUGS::
     Image and video hosting by TinyPic
    Mama to 5 angel babies, 1 rainbow baby, and 2 more angel babies. 
    My beautiful Ella/ToT arrived 10/10/12. 
  • (((Hugs))) I know how tough these types of kind of results can be. My daughter didn't have any a trisomy - but I get it. 

     

  • I don't have anything to offer but so, so many hugs.
    image

    imageimageimageTTC since 07/11 | natural m/c 08/11 | BFP 12/6/2011 | Elinor Anna born 8/18/2012 | BFP #2 1/16/2014
    Lilypie Third Birthday tickers
    Pregnancy Ticker
  • Many T and P's for you and your little boy!

    Lilypie Angel and Memorial tickersLilypie - (B9PH)

     

    Lilypie - (0YVF)
     TTC since 11/2009; Lap/HSG/Hysteroscopy: 5/2011 (endometriosis - removed; endocervical polyp - removed; high pressure in bilateral tubes - cleared)

    BFP #1: 8/4/11; DS1 born sleeping on 11/16/11 at 19w1d

    BFP # 2: 5/7/12, EDD 1/10/13, DS2 born 1/4/13

    BFP # 3: 11/8/13, EDD 7/17/14, mmc 10wks

    BFP # 4: 5/16/14, EDD 1/15/15, praying for our 2nd rainbow baby 

  • I am so sorry. I hope the amnio gives you some good news. ((hugs))
    BFP#1 12/18/10 EDD 8/28/11 | 2/14/11 discovered that our baby girl had anencephaly D&C 2/17/11 at 12.5 weeks | no O or AF post loss - Dx: AO + mild PCOS = secondary infertility Provera after 70 days = AF but no O | Provera + 50mg Clomid after 110 days = AF but no O 3 rounds of 100mg Clomid + Estrogen + Progesterone = mixed O results, all BFN hysteroscopy 1/6/12 - removed fibroid tissue injection cycle #1 - 75 IU follistim + ovidrel (triggered 2/9/12) + endometrin = BFP! EDD 11/3/12 | Beta @ 13dpo = 184, 17dpo = 993, 26dpo = >5000 IT'S TWIN BOYS!! Tommy and Charlie arrived on 9/10/12 after less than 6 hours of labor at 32 weeks Image and video hosting by TinyPic Image and video hosting by TinyPic Image and video hosting by TinyPic Lilypie Premature Baby tickers
  • I am so very sorry to read this update.  Many thoughts and prayers for you and your family as you move forward.
    Cycle 7: BFP 1-17-12, Missed Miscarriage at 8w6d (measured 7w2d, no HB), D&C 2-29-12
    Cycle 9: BFP 5-3-12:EDD 1-24-13 It's a girl! Born 12-27-12 Baby Birthday Ticker Ticker Image and video hosting by TinyPic
  • Huge hugs to you and tons of prayers for your little boy. I wish I had advice to offer. I hope the amnio brings you some good news.
    Warning No formatter is installed for the format bbhtml
  • I have no advice or experience to share. Just hugs, thoughts and prayers. I hope you find the answers you seek.
    DS born 2009
    BFP#2 ~ 8/2/11, EDD 4/11/12, D&C 9/12/11 at 9w5d
    BFP#3 ~ 4/15/12, EDD 12/21/12 ~ DD born 12/22/12
    Lilypie Fourth Birthday tickers Lilypie First Birthday tickers
  • (Huge hugs) praying for a miracle for your little boy.

    TTC since 7/10, BFP#1~6/28/11(4wks2d)~EDD 3/4/12, missed m/c(8wks)~8/12/11, D&C~8/16/11
    BFP#2~12/15/11~EDD 8/25/12, Hannah born 8/22/12~ 7lbs 10oz & 21 in. long. :)

    BFP#3~1/12/14~EDD 9/23/14, Found out baby is a girl!~4/18/14 :)

    Baby Birthday Ticker Ticker

    image

     

    || [url=http;//www.fertilityfriend.com[url=http://www.fertilityfriend.com/home/34aafc/]My Ovulation Chart[/url] || [url=http;//www.fertilityfriend.com]Ovulation Chart[/url]
    || [url=http;//www.
  • Sending you all the best thoughts for your amnio.  Hoping the amnio, and it's associated ultrasound, will bring you some answers.  I'm so very sorry you're facing this.

    BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11

    BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14

     

    Lilypie - (2llN)

    Lilypie - (2L9u)

     

      My Recipe Blog
    ~All AL'ers welcome~

  • Big hugs lots of prayers your way. 
    BFP CP 1/12/11 DD born 10/16/11
  • I'm sorry you and your family are going through this. I don't have any advice but I did want to give you some hugs.
    My Chart

    My Life

    BFP 7.7.09 - CVS 9.10.09 (Girl) - 9.24.09 Severe Fatal Malformation - D&E 10.7.09 @ 17wks
    BFP 6.1.10 - 6.10.10 Ectopic M/C @ 5wks
    BFP 10.26.10 - 10.29.10 CP
    BFP 1.30.11 - CVS 3.28.11 (Girl) - EDD 10.11.11 - Born 10.6.11
    BFP 12.18.12 - 12.20.12 CP
    BFP 3.18.13 - CVS 5.21.13 (Girl) - EDD 12.2.13 - Born 11.24.13
    BFP 6.10.14 - CVS 7.2.14 (Girl) - EDD 1.12.15 - Born sleeping 8.6.14 @ 17w5d
  • ((HUGS)) I don't have any advice, just sending T&Ps your way.
    TTC January 2010
    BFP #1 10-11-10 ectopic discovered 10-22-10, 10-23-10 methotrexate & emergency surgery, lost right tube BFP #2 12-1-10 Found to be tissue dropped from salingectomy or missed heterotopic pregnancy from BFP #1 BFP #3 1-30-11 DS arrived on due date 10-10-11 BFP #4 Surprise 9-3-12 EDD 5-9-13 DS2 arrived 5-5-13 BFP #5 5-14-14 Emergency D&C 6-16-14 9 weeks
  • I wish I had advice or words of wisdom for you, but I don't... I am sending so many prayers your way though. FX that the amnio comes back with better results. BIG, HUGE, (((HUGS))). 
    PAL JULY SIGGY CHALLENGE: CAKE WRECKS
    image
    You Made me a mommy... 

    Ticker id: ARvP

           imageimageimageimageimage
     Lilypie - (KAFM)

  • I have no advice, just wanted to say that I'm sorry and I'm sending good thoughts and prayers your way!


    image



    Baby Birthday Ticker Ticker

    06/10 mmc@ 10 weeks: 03/11 mc @ 8 weeks due to blighted ovum.
This discussion has been closed.
Choose Another Board
Search Boards
"
"