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Should I get a second opinion?

butterflygroovesbutterflygrooves member
in Special Needs
Alright, I'm getting over the initial shock of Owl's CP dx and am wondering if I should get a second opinion from another ortho in regards to braces or inserts for her pronation.

The Dr. we saw last week said that there is no need to use them because the CP is causing the pronation and is something that can't be corrected with orthotics. I understand that the CP is causing this problem but don't want any further issues because I didn't push for something I think could help. He stressed that her CP is mild and that since she walks, stoops, etc without assistance that she definitely doesn't need anything to correct her ankle position.

What would you do?

Two Mommies Healing Hearts

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Re: Should I get a second opinion?

  • DixieNormous330DixieNormous330 member

    A second opinion never hurts. DD sees a top pediatric neurologist at a Top 3 hospital. We STILL went for a second opinion at CHOP in Philly. Mostly for us to be reassured that we're doing right by DD.

     

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  • ToastieSimonsToastieSimons member
    Have you considered a physiatrist?  If the pronation is caused by CP, which I'm guessing the dr means that the tone problems are causing pronation and not any orthopedic issue, then a physiatrist is who you want.  They basically work with how th
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • ally81698ally81698 member

    imageToastieSimons:
    Have you considered a physiatrist?  If the pronation is caused by CP, which I'm guessing the dr means that
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  • mommyof4boysmommyof4boys member
    I third this.  Ours prescribes orthotics for Matthew and has helped get pt services.
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  • realisticdreamsrealisticdreams member
    Does she already get PT?  Our initial set of braces the PT basically just told the pedi what to write for and we went to the prosthetic/orthotics place.  The orthotics came from the physiatrist.  

    P's CP is very mild and she still us
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

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  • butterflygroovesbutterflygrooves member
    Thanks everyone, I will look into seeing a physiatrist, our neuro referred us to ortho so I figured this was who would help us with braces. The neuro also sent a referral to PT but it's taking forever so our early start teacher is having her PT visit us

    Two Mommies Healing Hearts

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