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autoimmune progesterone dermatitis (DD mentioned)

possitivethoughtspossitivethoughts member
in TTC After a Loss

Has anyone heard of this or anyone actually dealt with it?

 I have been dealing with this "rare" disease, I guess you could call it, and just recently was diagnosed with it. My problem actually started after my DD was born 8 Years ago, that every month, right after ovulation, I would break out into this itchy nasty rash all over my face, neck and arms.

I went to so many dermatologists wanting to find out what was wrong with me and they would all say that everything was fine and normal. well when you are dealing with a recurring problem every month and no one seems to be able to find a solution, you start writing down all the symptoms, dates of occurrence and so forth, and so I did just that. Well, by doing that I found that is happens right after I ovulate and it clears by the second day im on my period.

anyways, It took 6 years for me to finally convince a doctor that I have a hormonal problem, or I thought I did.  Untill I was explained that it's not that my hormones are off balance, in fact, I developed an allergic reaction to progesterone.

I am apparently allergic to "progesterone" levels when they spike :(

this happens during the luteal phase of my cycle, and the only way they say I can get better or "beat it" is by going thru menopause...

this seriously sucks.  I don't know if that means that my journey to TTC has to end..

I just want to know if any of you ladies have heard of this or have had any experience with it ?

its a long shot considering its a rare dissorder.. :(

BabyFetus Ticker

6th pregnancy, 4th baby

BFP 12/08/2015

Beta #1 12/08/2015 (3097)

Beta #2 12/11/2015 (6033)


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Re: autoimmune progesterone dermatitis (DD mentioned)

  • PinkCaminoPinkCamino member

    this is terrible! I'm so sorry that you deal with this. I had no idea that something like this was even possible!!!

     

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  • possitivethoughtspossitivethoughts member
    imagePink Camino:

    this is terrible! I'm so sorry that you deal with this. I had no idea that something like this was even possible!

    BabyFetus Ticker

    6th pregnancy, 4th baby

    BFP 12/08/2015

    Beta #1 12/08/2015 (3097)

    Beta #2 12/11/2015 (6033)


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  • PinkCaminoPinkCamino member
    imagepossitivethoughts:
    imagePin
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  • possitivethoughtspossitivethoughts member
    imagelindsayhilleary:
    I'm so sorry. I've never heard of this before. That must have been incredibly frustrating all those years with y
    BabyFetus Ticker

    6th pregnancy, 4th baby

    BFP 12/08/2015

    Beta #1 12/08/2015 (3097)

    Beta #2 12/11/2015 (6033)


    Report Reply
  • possitivethoughtspossitivethoughts member
    imagePink Camino:
    imagepossitive
    BabyFetus Ticker

    6th pregnancy, 4th baby

    BFP 12/08/2015

    Beta #1 12/08/2015 (3097)

    Beta #2 12/11/2015 (6033)


    Report Reply
  • MTDBMTDB member

    Have you seen/are you seeing an RE? They are much more experienced at dealing with issues that can cause you to have trouble getting pregnant than a regular OB/GYN or other doctor. I don't have what you have (and I'm

    BabyFruit Ticker


    TTC #1 since November 2011; Unexplained infertility
    BFP #1: 2/8/13; Missed miscarriage discovered at 8w0d, measuring only 6w1d, no heartbeat; M/C via misoprostol on 3/22/13
    IUI #1: 11/12/13: BFP #2: 11/26/2013; Beta #1: 256; Beta #2: 7239; U/S #1: 12/19/2013: HB of 145! Measuring right on schedule; Due date 8/5/14
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  • MsAmandaPantsMsAmandaPants member
    Oh, hon, I am so sorry! That sounds positively miserable. I'm so glad you were persistent and finallly got an answer--although it is truly a crapppy one.  I'm so sorry, I hope you can find some answers and some relief.
    Me: 36 yo, TTC #1 since Feb. 2012
    BFP #1, 3/12, EDD 11/9/12, MMC 3/27/12, D&C 4/10/12

    BFP #2: 11/16/12, EDD 7/25/13, MMC 12/5/12, D&C 12/6/12, Complete molar pregnancy confirmed 2/9/13, benched for 6 months until  August 2013

    IUI #1, 8/16/13 Femara + Menopur, 3 mature follicles, BFN
    IUI #2 (back-to-back, 9/12/13 and 9/13/13) Femara + Menopur, four mature follicles, BFFN
    IUI #3, 10/8/13 Femara + Menopur, six mature follicles, BFN

    BFP #3, 12/9/2013, while on treatment break, EDD: 8/22/2014  Please stick and grow, LO!

    Additional Dx: hypothyroidism, TgAb positive & anti-TPO positive, POR/DOR (2/2013), and suspected endometriosis

    ******All AL always welcome******
    image

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  • bethLenellbethLenell member
    That is just awful!! I'm so sorry you are going through this. I hope that some doctor somewhere can help you figure out what to do! Sending some T's and P's your way!
    Baby Birthday Ticker Ticker Lilypie Angel and Memorial tickers



    imageimage

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  • Mrsbtobe2012Mrsbtobe2012 member
    Sorry you are going through this, what a crazy thing! I hope you can find some solution to your problem. I also second the seeing a RE suggestion, they could have some experience in this.
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  • heather52904heather52904 member
    I'm so sorry.  That sounds awful.  I'm glad you have an answer to what was going on.  I hope you can find some answers to the TTC aspect!

    TTC Since 8/2011
    BFP #1 5/13/12 * EDD 1/24/13 * MC at 7 wks 4 days on 6/11/12
    BFP #2 5/13/13 * Current EDD 1/23/14

    Baby N born 2/8/14


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    Lilypie - (HD7B)

     

     

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