High-Risk Pregnancy

Factor V (hetero) Anyone?

I was diagnosed with Factor V (only one set of genes from my momma) about 5 years ago, and up until this point haven't been told to really do anything about it.  Now that i'm pregnant, I'm a little more concerned.  I'll admit, I probably don't know as much as I should about it...so any imput would be greatly appreciated.  I told the nurse I met with at my first appt.  Here comment was, "wow, that's really scary"....and what did she do about it? NOTHING. I haven't met with the actualy OB and don't until the middle of April.  If she doesn't say anything about it, I might end up switching docs....suggestions?

I posted on my Birth Month board and got lots of hits...a lot them saying to post on the high risk board - so here I am :)

 

 <3 Brantley Richard - Born October 28, 2013 <3

<3 Baby #2 due to arrive May 18, 2015 <3

Re: Factor V (hetero) Anyone?

  • DLo13DLo13 member

    I found out I have Factor V when I was pregnant with my daughter.  After 2 prior miscarriages and unexplained pregnancy problems my OB (who is VERY conservative and proactive) sent me to a hematologist to rule out any clotting disorders....or so w

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  • Yes I think we are both October moms... Like I said before go see a hematologist and get retested. I am waiting for my results from my factor VII levels test. It's a different clotting disorder but still your hematologist and OB should be on the same page
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  • I am on aspirin and Lovenox.  I have a history of recurrent loss.   

    If I were in your situation, I would see a perinatologist if possible and a hematologist if not.   

    TTC #1 12/2009
    BFP #1 1/2010, M/C 6 weeks
    BFP #2 6/2010, DD lost to
    congenital heart diseasewe are heartbroken.

    TTC #2 4/2011, diagnosed MTHFR, FVL
    Four natural cycles BFN; Clomid IUI BFN; Follistim IUI BFN;
    1/2012 IVF #1 BFN
    4/2012 FET BFP #3
    5/2012 7w1d u/s: anembryonic demise; M/C @ 8w.
    6/2012 found Stage II/III endo on laparoscopy, removed w/ laser.
    8/2012 IVF #2 epic fail: no viable embryos.

    Vacation, break, second opinions, on to new RE.
    1/2013 Surprise chemical pregnancy BFP #4 (break cycle), IVF #3 postponed.
    2/2013 TI w/ hormonal support, prednisone, aspirin, Lovenox, acupuncture gave us a miracle BFP #5!
    Heartbeat on U/S at 6w1d!
    Baby,please stay!!
    Our miracle baby boy arrived 10/2013!  We are so in love!!

    10/2014 Surprise BFP #6
    Our second daughter arrived in May 2015!  We are so grateful!  

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  • I'm in the same boat.  Once you go in to an OB they should at least suggest that you take blood thinners like Lovenox (which is what I take) or Heperin (there are others but I think those are most common).  What it means is that throughout pregn
  • I have heterozygous FVL mutation. I pretty much am started on lovenox as soon as I get a BFP I have already miscarried once. I was diagnosed long before I was ever trying to get pregnant. My mom and my sisters all have this and have had serious complicati
  • Yes, you need to talk to your OB about this.  However, not everyone who is hetero FVL goes on blood thinners.  I did not with my first pregnancy and everything turned out just fine. 

    When my DD was about a year old I had a "mini s


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  • I have factor II. I have been on lovenox then heparin since my bfp. I think you would be smart to take baby aspirin until you are able to see a specialist. Better safe than sorry!

    bfp #1 10/15/2009 m/c 11/4/09 10 weeks Lily you are not forgotten
    bfp #2 4/5/2010 CP, m/c 4/12/10 5 weeks Baby Lo
    Diagnosed PCOS 10/10 RX 1500 mg Metformin/day
    bfp#3 4/5/2011 Missed m/c discovered 5/24/2011 (10w 5d) baby Asher stopped growing at 6 weeks
    I know he is playing with his siblings in heaven right now...

    rx'd factor II gene mutation 7/11 prescribed 5000 units Heparin daily
    rx'd Sjogren's Disease 8/11

    bfp #4 9-6-2012 RAINBOW Baby Ky born 5-9-13
    bfp #5 8-26-14  RAINBOW #2 Due 5-8-2015
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