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Frustrated with Reflux

Nita14701Nita14701 member
in Preemies

LO had her appointment at the NICU follow up clinic yesterday. I explained to dr all that has been going on and our struggles with feeding/reflux/general fussyness and wondering whether it's colic, reflux, digestion issues or a combination of everything. Since LO's weight gain has been slow and her total volume of intake for the day is low for her age and weight, Dr wants us to mix neosure to 24 cal. For reflux she wants us to try rice cereal 2x a day for 1 week and then if situation doesn't improve she'll prescribe zantac. So LO basically spit up whole 2 oz of rice cerealed formula yesterday and this am. I emailed dr this am and asked if we can start zantac now. I'm waiting for a response.

DH and I are both so  worried. We feel so helpless right now. It feels like as time keeps ticking by every time she spits up or has a day with low formula intake is just hurting her as far as gaining weight. Ok... vent over.

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Re: Frustrated with Reflux

  • Missa_gMissa_g member
    Demand a GI referal. Both of my boys had reflux, one was silent and one was severe. Things got a lot better when we started seeing a GI specialist who was familiar with reflux in preemies.
    Lilypie Premature Baby tickers
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  • brachysirabrachysira member
    We make 24 calorie breastmilk and our LO is gaining well.  I think it might help her keep it down because it might be a little heavier than straight breastmilk, she seems to like the taste, and it makes her full.  It was so successful that we only do it twice/day now, and we'll be able to quit at 4 mo.  I think you're right to stop the rice cereal and ask for meds.  They can really help.  We like Zantac, and most people find some relief with Prevacid if Zantac doesn't work.  There are other things you can do too, like keep your LO upright after eating.  There's a lot on the web.  It's frustrating, but it will get better.  Good luck.
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  • Nita14701Nita14701 member

    imageMissa_g:
    Demand a GI referal. Both of my boys had reflux, one was silent and one was severe. Things got a lot better when we started seeing a GI specialist who was familiar with reflux in preemies.

    Thanks! I was worried we were going too crazy and we're first time parents but I really feel like we need to elevate things. Thankfully my insurance does not require a referal so I just scheduled an appointment with a ped gi specialist. First aval appt isn't for 3 weeks but I feel a little better knowing that we have it in case things don't settle down. 

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  • JennZKJennZK member
    We discovered our little guy had reflux about a week after we got home with him. I was freaking out because we were on 27 cal formula and had to count every cc that he ate because he was taking in just enough to get by. We kind of played formula roulette until we found one that helped and ended up with similac sensitive. We always make sure to keep him sitting up or at least laying at an incline for at least an hour after eating. We found that eating less amount and more often helps. Also, gas drops with every bottle help a lot. And I swear by regular chiropractic adjustments. At first he wasn't too sure about them, but now he loves it. We go every 3 weeks and if he seems to have issues we'll go earlier. With this combo we have never had to do rice cereal or meds. 
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  • Sept30MadisonSept30Madison member

    My DD also has reflux.

    Due to the pain associated with reflux, she has feeding aversion which developed at 3 months old and has manifested as very fussy eating (unless she's sleeping) and a low ounce count given what her intake should be for age and weight. We add Enfacare to my BM to mix it to a total of 26 calories per ounce.  She has an average of 18 ounces a day.  She's now about 12.5 pounds at just over 6 months adjusted.

    We tried zantac, but are now on prevacid.  I think it's a bit better now. She's not fussy about her eating nearly as much,but we really only feed her now when she's asleep.

    We are working with a SLP for her feeding aversion and if things go downhill again we will go to a Ped GI.

    DD#1, Alexa, Born 8/08; TTC # 2 since 3/2010; 8 IUI BFN; 1 cervical pregnancy in April 2011; IVF #1 Dec 2011 worked. EDD = 9/7/12. Bedrest starting 6/4/12. Julia Mae born 7/1/12, home 8/12/12. Lilypie Premature Baby tickers
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  • Nita14701Nita14701 member
    imageSept30Madison:

    My DD also has reflux.

    Due to the pain associated with reflux, she has feeding aversion which developed at 3 months old and has manifested as very fussy eating (unless she's sleeping) and a low ounce count given what her intake should be for age and weight. We add Enfacare to my BM to mix it to a total of 26 calories per ounce.  She has an average of 18 ounces a day.  She's now about 12.5 pounds at just over 6 months adjusted.

    We tried zantac, but are now on prevacid.  I think it's a bit better now. She's not fussy about her eating nearly as much,but we really only feed her now when she's asleep.

    We are working with a SLP for her feeding aversion and if things go downhill again we will go to a Ped GI.

    This sounds so similar to our situation. We did notice that the best feedings are when she is half asleep in the middle of the night. She is less fussy and she eats more.

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