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Preemies
cottingham3
member
being thankful
cottingham3
member
in Preemies
I guess I just need to vent and get a little feed back from you ladies.
My 26weeker is now 35weeks. He was 1lb 12 oz at birth and now weighs 4lbs 10 oz. His only issude have been lungs. No brain bleeds, no eye or retina issues, no gasterointestinal problems, no skin problems...only lungs
His second week of life was the worst. He got pnemonia in both lungs along with a blood infection all at the same time. for about 50 hrs he was on a high pressure and 100 percent oxygen and only sated in the low 80's. It was tge moat helpless time of my life. He was on the ossolater vent for 21 days! He is manily on nasal cannual these day requiring about 30 percent oxygen. Some days he breathes harder and faster and they will give him a few hours on the CPAP to give him rest. He has only had two rounds on Celestone since birth.
He is taking 40mL of BM every 3 hrs OG and bottle twice per day if his respitory rate is low enough... and growing like a weed. He is doing great with temp contol so far but he is still in an isollette. I know how blessed I am!
However, I feel like we have hit a plateau. For the past 9 days there have been no changes in his respitory. He may go 5 days on nasal cannula and then have a rough spell and get out back on CPAP. All three of our neonatogists agree that time is all he needs. That new lung growth is better than any medical intervention...such as more steriods...they could give. I am having a hard time not seeing this as fustrating. We are so ready to have him home. I want him well of course and I know medicine can only do so much. The NICU is closed to visitors other than parents and grandparents for flu RSV season so my older childern have only seen their long awaited brother threw the window. I am not sure if i can still blame hormones 9 weeks pp...but the last few days have been hard. I keep telling my self how blessed we arw not to have feeding or other major issues and feel guilty over wishing he has something they could fix.
Anyhow, thanks for reading. I know you ladies understand how emotionally draining this process is!
My 26weeker is now 35weeks. He was 1lb 12 oz at birth and now weighs 4lbs 10 oz. His only issude have been lungs. No brain bleeds, no eye or retina issues, no gasterointestinal problems, no skin problems...only lungs
His second week of life was the worst. He got pnemonia in both lungs along with a blood infection all at the same time. for about 50 hrs he was on a high pressure and 100 percent oxygen and only sated in the low 80's. It was tge moat helpless time of my life. He was on the ossolater vent for 21 days! He is manily on nasal cannual these day requiring about 30 percent oxygen. Some days he breathes harder and faster and they will give him a few hours on the CPAP to give him rest. He has only had two rounds on Celestone since birth.
He is taking 40mL of BM every 3 hrs OG and bottle twice per day if his respitory rate is low enough... and growing like a weed. He is doing great with temp contol so far but he is still in an isollette. I know how blessed I am!
However, I feel like we have hit a plateau. For the past 9 days there have been no changes in his respitory. He may go 5 days on nasal cannula and then have a rough spell and get out back on CPAP. All three of our neonatogists agree that time is all he needs. That new lung growth is better than any medical intervention...such as more steriods...they could give. I am having a hard time not seeing this as fustrating. We are so ready to have him home. I want him well of course and I know medicine can only do so much. The NICU is closed to visitors other than parents and grandparents for flu RSV season so my older childern have only seen their long awaited brother threw the window. I am not sure if i can still blame hormones 9 weeks pp...but the last few days have been hard. I keep telling my self how blessed we arw not to have feeding or other major issues and feel guilty over wishing he has something they could fix.
Anyhow, thanks for reading. I know you ladies understand how emotionally draining this process is!
This discussion has been closed.
Re: being thankful
This exactly. I was more frustrated the final 6 weeks than the prior, scarier 6 weeks. Hang in there...my parents described this period as the 'desert,' just out there on your own, just trying to get through. It's so isolating, so challenging. Keep your head up ... your LO WILL come home. In due time. I know how hard this period is...I vented plenty of times on this board during that incredibly tough period myself.
Also, we just put the crib up. Maybe we should have waited but I think that has us all on edge! I trust the doctors completely and know he will be home at the PERFECT time.
Thankful for your responses!
It is hard, especially because there's no set date. When we're pregnant, we have an estimated date for when we can expect the baby to come home. In the NICU, not so much.
DD had some lung issues--she was on CPAP until almost due date and then she came home on the nasal cannula. She finally was able to breathe on her own about 6 weeks, adjusted. It was hard not knowing when things were going to change, but it helped knowing that someday, they will get better.
I promise, things will get better.