Late Term and Child Loss

XP: I guess I belong here now...

After a perfectly normal first tri screen and NT scan, my OB called on Tuesday to tell me that my 2nd round bloodwork showed an extremely high AFP and a high risk for neural tube defects (1:14).  They moved my anatomy scan up to this morning.  We were mentally prepared for spina bifida, but we were not mentally prepared to be told that our baby functionally has no brain.  There isn't much to do at this point except plan the next steps.  We are waiting to hear from the medical group our MFM refers to in these situations.  

 DH and I are really sad, probably a little in shock, but know that we are comfortable with what we have to do.  This just isn't how I planned to feel after my A/S....my big concern was whether or not we were going to stay Team Green.  

 

BFP#1 on 7.1.10 ~ Little Miss M born on 3.3.11 BFP#2 on 4.7.12 ~ EDD 12.17.12 ~ natural MC at 6w3d BFP#3 in 11.5.12 ~ EDD 6.29.13 ~ angel baby lost at 18w6d due to terminal diagnosis

Re: XP: I guess I belong here now...

  • I am so so sorry!!!
    DS- Brenden born 11/13/93 Missed miscarriage on March 6, 2007 @ 9 weeks D&C on March 8th 2007. Riley Annalise born 2/25/08 ( 3 weeks early weighing 8 lbs 12.8 oz.) Chemical pregnancy 3/2010. Sydney Adriana born sleeping on 9/30/11 weighing 10lbs 3 oz at 38wks 4 days. Trinity Alivia born via c section at 36 wks 4 days weighing 9 lbs. 5.7 oz. She is our amazing rainbow baby!!! Lilypie Angel and Memorial tickers Lilypie First Birthday tickers PGAL buddy drvst8
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  • I am so sorry to hear this.

    We had a VERY similar experience as you...with things looking a little off at the AS and expecting a child with an impairment to a week later learning  her brain was completely crushed.  I had NO fear going into the AS...just was anxious to learn what I was having.  How naive.

    Please feel free to PM if you need to talk about it.  I know how devastating it is to have a 2nd tri loss and how your world just stops.  Give yourself time to grieve and just know that there are a lot of great women on this board to help you through.    It is still very hard and I am still so devastated but I see new healing each week.

    HUGS! 

    Lilypie Angel and Memorial tickers

    8/12-Suprise BFP- Sweet Bunny Born Sleeping 11/21/12 (19 weeks)

    -5/7/13- MMC (8 Weeks)

    11/6/13- BO discovered at 7 weeks- natural MC 11/25/13

    8/14- Surpise IF dx...low AMH (.24)- moving on to IVF

    IVF #1- 11/14- 6R5M4F=2 perfect frosties

    12/19/14- FET of 2 embabies = BFP!!!  One Little Bean EDD: 9/3/15

    Everyone Welcome.

  • Hugs to you. I am so sorry that you are going through this. We lost our baby girl to a terminal diagnosis in September. No parent should ever have to be faced with this experience. Please feel free to private message me anytime. Please know that you have come to a very supportive and understanding place with amazing women. You and your family are in my thoughts and prayers.
  • I am so sorry things didn't turn out better for you.  I saw your post on 2nd tri the other night and really hoped you wouldn't be joining us.  I too had a loss very similar to yours.  great NT scan & bloodwork but a high afp score. Our little girl had a defect called encephalocele.  Please feel free to pm to talk or just ask questions. 
  • As you can see, there are many of us who have dealt with awful diagnosis. Some chose to make the heartbreaking choice to terminate while others carried to term knowing the baby would not survive. Some chose to carry and lost the baby in utero. No matter what you decide, we are here for you. I am so sorry that you received horrible news.
    Lilypie Third Birthday tickers Lilypie Angel and Memorial tickers Daisypath Anniversary tickers
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    ***Congratulations to my TTCAL buddy Roxyttandme!! It's a GIRL!! Charlotte arrived on 9/29!!!!***
    PGaL/PAL Always Welcome!!
  • I am so, so sorry! (((Hugs)))
    Tim 12/30/00 Brad 4/30/02 Alex 9/29/03 Lilypie Angel and Memorial tickers
  • I'm so sorry your going through this.i know there is nothing I can say to make you feel better. I am thinking of you.
    Lilypie Angel and Memorial ticker
    Due with baby boy # 2 in May 2016
    DD #1 born January 2014

  • Ticker Warning...





    We lost our daughter to anencephaly, which sounds like the diagnosis you received.  As you know, it never in a million years crossed my mind that it could happen.  I am so so sorry you are going through this, and I hope you can find a bit of comfort here with all these wonderful women.  If you have any questions, please feel free to PM me.  I do not write on this wall often, but do come on here and check how everyone is doing.  (((HUGE HUGS))) sweetie.
    Lilypie Kids Birthday tickers Lilypie Fourth Birthday tickers Lilypie Angel and Memorial tickers Lilypie First Birthday tickers
  • Thank you, everyone.  Today has been such a blur.  SInce there is only CSF where there should be a brain, we've decided to terminate the pregnancy. The MFM initially referred us to a really supportive OB group at a local hospital but DH works for the federal government and the insurance doesn't cover the termination of pregnancy (sigh), we are going to a clinic.  They seem equally as nice and reputable, it's just annoying that on top of all of this news I have to pay for it out of pocket. 


    BFP#1 on 7.1.10 ~ Little Miss M born on 3.3.11 BFP#2 on 4.7.12 ~ EDD 12.17.12 ~ natural MC at 6w3d BFP#3 in 11.5.12 ~ EDD 6.29.13 ~ angel baby lost at 18w6d due to terminal diagnosis
  • I am so sorry.
    TTC #1 since 10/2010 RE consult 6/2011 PCOS (known) MFI IVF #1 w/ICSI 2/2012 BFP TRIPLETS our angels grew wings at 19.5 weeks 6.25.12 IVF #2 2/2013 Sono shows tissue Hysteroscopy needed Changing RE www.chasingstarsisbettertogether.com Lilypie Angel and Memorial tickers ~~~all welcome~~~
  • I'm so sorry.
    Mom to Eliott Alexander, born sleeping at 37 weeks on 8/13/10. Most of us only dream of angels - I held one in my arms.
    BFP #2 - EDD 2/26/12 M/C 6/28/11 @ 5w2d
    BFP #3 - EDD 4/7/12 M/C 8/2/11 @ 4w2d
    Too beautiful for this earth
    BFP #4 - EDD 12/09/12, Lucille arrived 11/26/12
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