After a perfectly normal first tri screen and NT scan, my OB called on Tuesday to tell me that my 2nd round bloodwork showed an extremely high AFP and a high risk for neural tube defects (1:14). They moved my anatomy scan up to this morning. We were mentally prepared for spina bifida, but we were not mentally prepared to be told that our baby functionally has no brain. There isn't much to do at this point except plan the next steps. We are waiting to hear from the medical group our MFM refers to in these situations.
DH and I are really sad, probably a little in shock, but know that we are comfortable with what we have to do. This just isn't how I planned to feel after my A/S....my big concern was whether or not we were going to stay Team Green.
Re: XP: I guess I belong here now...
I am so sorry to hear this.
We had a VERY similar experience as you...with things looking a little off at the AS and expecting a child with an impairment to a week later learning her brain was completely crushed. I had NO fear going into the AS...just was anxious to learn what I was having. How naive.
Please feel free to PM if you need to talk about it. I know how devastating it is to have a 2nd tri loss and how your world just stops. Give yourself time to grieve and just know that there are a lot of great women on this board to help you through. It is still very hard and I am still so devastated but I see new healing each week.
HUGS!
8/12-Suprise BFP- Sweet Bunny Born Sleeping 11/21/12 (19 weeks)
-5/7/13- MMC (8 Weeks)
11/6/13- BO discovered at 7 weeks- natural MC 11/25/13
8/14- Surpise IF dx...low AMH (.24)- moving on to IVF
IVF #1- 11/14- 6R5M4F=2 perfect frosties
12/19/14- FET of 2 embabies = BFP!!! One Little Bean EDD: 9/3/15
Everyone Welcome.
***Congratulations to my TTCAL buddy Roxyttandme!! It's a GIRL!! Charlotte arrived on 9/29!!!!***
PGaL/PAL Always Welcome!!
Due with baby boy # 2 in May 2016
DD #1 born January 2014
We lost our daughter to anencephaly, which sounds like the diagnosis you received. As you know, it never in a million years crossed my mind that it could happen. I am so so sorry you are going through this, and I hope you can find a bit of comfort here with all these wonderful women. If you have any questions, please feel free to PM me. I do not write on this wall often, but do come on here and check how everyone is doing. (((HUGE HUGS))) sweetie.
Thank you, everyone. Today has been such a blur. SInce there is only CSF where there should be a brain, we've decided to terminate the pregnancy. The MFM initially referred us to a really supportive OB group at a local hospital but DH works for the federal government and the insurance doesn't cover the termination of pregnancy (sigh), we are going to a clinic. They seem equally as nice and reputable, it's just annoying that on top of all of this news I have to pay for it out of pocket.
BFP #2 - EDD 2/26/12 M/C 6/28/11 @ 5w2d
BFP #3 - EDD 4/7/12 M/C 8/2/11 @ 4w2d
Too beautiful for this earth
BFP #4 - EDD 12/09/12, Lucille arrived 11/26/12