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crabbypatty426
member
Update on my update
crabbypatty426
member
So I've posted a couple of times about my son who we had evaluated for his speech delay. He had a follow up eval last Tuesday, where they determined he couldn't hear (2nd group of people to tell us that) and that all of the places he was falling behind (mostly communication) were related to that. He was pretty much right on average in all the other areas. They said we would start therapy once a week to "get him ready" for speech therapy. We met his therapist and she's lovely. I couldn't be happier about her.
So then Friday, we had his appointment with the ENT that his pedi sent us to. They had an audiologist on site that day so they sent us over for a hearing test and another tympanogram, both of which were absolutely perfect. The ENT was all enthusiastic, and I was sort of sitting there in shock. I asked her what she thought about the whole thing. She got really quiet and sort of uncomfortable and said "In these cases, I might think we're looking at a spectrum disorder." and then sort of braced for my reaction. I told her that's why we'd had him evaluated, and she said that was wonderful, we're headed in the right direction, blah blah blah. So then I promptly got back in my car and sobbed. I know it's silly. I didn't want there to be anything wrong with his hearing. I just wanted an answer, and now we're back at the beginning. So, we start therapy and we see where we go from there I guess. But I expect I'll be back asking lots of stupid questions and reading the FAQs again. I just wanted to update and say thanks for all of the encouragement and feedback.
A 4/26/10 and B 6/13/11
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Re: Update on my update
Olivia Kate is almost 4!
Diagnosed with autism this year and doing great!
I kind of teared up for you since we're going through the same thing with my daughter. Her speech completely stopped progressing and she wasn't real responsive to her name/basic instructions. We knew she had some problems with her ears for a short time--she had one ear infection and some middle ear fluid. We had her evaluated by an audiologist and her hearing was perfect but they detected some fluid and recommended an ENT/neuro. by the time we got to the ENT her ears were perfect yet her language/listening skills made no progress.
I can tell you since we're a bit ahead of where you were that she has made lots of progress in the past 6 months since we started therapy. Her eye contact is much improved. Her receptive language is improved and she's beginning to use speech to communicate vs label objects. She babbles with jargon instead of being silent all day long and uses 25 words. She's got a long way to go but there has been improvement. We're in the waiting game of a complete neurodevelopmental eval at our local children's hospital. We're also starting her in a small group with 2 other kiddos and two therapist which is a mix of PECS to help motivate communication through the use of visuals paired with some floortime to teach appropriate play skills. I'm really excited for this and hoping we see more changes.