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I think we just saw our first seizure

ToastieSimonsToastieSimons member
in Special Needs

We were all eating dinner with my parents and DS1 was sitting in a booster seat at the table.  We were all doing fine and I was telling my dad to see how bad of a haircut DS1 had gotten earlier.  I called DS1's name to get him to turn my way, instead of looking at DH.  He did not respond.  His head was turned left, his hands were on his chest gripping his sweatshirt jacket zipper tightly and his feet were kicking rhythimcally (which he does occassionally because it makes the chair shake).  

It lasted about 30 seconds at which point I had taken him out of the booster seat and i was holding him up on my shoulder.  He just laid there for like 5 minutes, my mom even said "it looks like he's going to fall asleep".  After about 5 minutes he just woke up and was back to himself. 

To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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Re: I think we just saw our first seizure

  • ToastieSimonsToastieSimons member
    image-auntie-:

    Yikes.

    How's he feeling now? How's him mom doing?

     He seemed fine the rest of the evening.  He had missed his nap and was really tired, which may have been enough to trigger a seizure.  Unfortunately with his rare diagnosis there is the "possibility" of seizures so it wasn't completely unexpected but we truly hoped we would never see it. 

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • zoeyandsummersmomzoeyandsummersmom member

    HUgs 

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  • nessamestreetnessamestreet
    It can be a very scary thing... Make sure though that you write this down because if it starts to become more frequent then you are gonna wanna talk to the dr. Good luck and hopefully he wont have any more! I have been dealing with them in my youngest daughter for 2.5 years now... She just came off medicine for them in July and has been seizure free!
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  • realisticdreamsrealisticdreams member
    It is scary, and it's kind of so quick but so long at the same time.  I would just let the neuro know (we just send an email since it happens so rarely in P) and that's about it.  
    HUGS!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • MaxandRubyMaxandRuby member
    Many hugs for you!
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  • Assembly_ReqdAssembly_Reqd member

    My heart sank for you. Crying Hugs.

    I am waiting for Nate's first seizure and I hope it never comes.

    WAY 2 Cool 4 School


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  • robynlesleyrobynlesley member

    Aww man.

    I'm really sorry to hear that. Hope he's doing OK today. 

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    Bronx Zoo: Summer 2013

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    To read my blog, click on the giraffe pic below!
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  • ToastieSimonsToastieSimons member

    imagenessamestreet:
    It can be a very scary thing... Make sure though that you write this down because if it starts to become more frequent then you are gonna wanna talk to the dr. Good luck and hopefully he wont have any more! I have been dealing with them in my youngest daughter for 2.5 years now... She just came off medicine for them in July and has been seizure free!

    thanks for the advice.  i definitely went and wrote it down 

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
    Report Reply
  • grbnikgrbnik
    HUGS.  I hope he and you are doing better today.  Right Hug
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  • mopdop2000mopdop2000

    Hugs. Left Hug Seizures are a tough thing to watch.

    Sir I just started having them about a month ago and we have been struggling to control them since then. The best advice that I received is to video anything that I think is seizure related and email it to neuro. So, keep your cell phone handy and video him if it happens again.

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  • lite-brightlite-bright member
    Oh, no! Tons of hugs to you. 
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    DD1, 1/5/2008 ~~~ DD2, 3/17/2010
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