Should I do a research study??

starspangledgirl1 · January 2013

They are doing a study here at the hospital I'm doing my IVF at. Has Anyone ever done one? Do you recommend it?

nawlinsgrl · January 2013

***SAIF/PAIF***

I can't speak to specific studies regarding IVF, but as a researcher, I would recommend considering it. Definitely read everything, so you know who is conducting the research (I would be wary of a drug company vs. a known gov't agency or university, for example), and what your participation would entail.

If you feel comfortable with what is being asked, go for it, because your participation can help others dealing with IF down the line. Does this study cover IVF costs as well, or is it just asking you to participate?

starspangledgirl1 · January 2013

a major ivy league medical school is doing it...it looks/sounds legit. they do not cover costs for IVF but my ins covers everything (thankfully) and they do reimburse me $50 every time i give any sample. i was more worried about it somehow compromising my treatment, i asked them about this today and they reassured me it wouldnt....just wanted to see what others opinions were....

nawlinsgrl · January 2013

It should in no way compromise your treatment, or they wouldn't be allowed to do it. All studies must receive approval from an Institutional Review Board (IRB), and their job is to ensure minimal harm to the participant. In your case, I cannot see how they would allow a study to take place that would impact your chance of success.

The only possible exception might be if it was a clinical trial, so the potential risks would be unknown, hence the purpose of the study, but the intent would be to have results be as good or better than standard treatment, and there would have to be some proof to have no known harmful methods to the participant, or at the very least, they would have to be disclosed.

It sounds like you are good to go, if you'd like to participate, and I would recommend it to you, but bottom line is, it's totally your call. Good luck to you!

amandaleigh1 · January 2013

SAIF response below

I participated in a clinical trial for my one and only IVF. To be completely honest, I wanted to participate because I am completely OOP for everything, and the study provided my drugs free of charge and I received a discount off of the cost of my cycle. The particular study did not really change my treatment plan by very much, though I had to be on double the amount of Lupron than my RE normally gives. Also there was slightly less flexibility in how much they could increase my dose. Fortunately I didn't need to go over the allowed amount. I was also very comfortable with either arm of the study so I did not worry about it compromising my care from that point of view.

If you are comfortable with the parameters of the study and feel like it won't hurt your chances at success, I would say go for it.

starspangledgirl1 · January 2013

i got more comfortable after i spoke at length to the study coordinator. they are testing for the effects on plastics, BPA, Phthalates, PVC, etc.
and chemicals on our fertility, something i believe strongly in so im happy to do it. they only take blood and urine, hair sample, and some of the follicular fluid at ER, which the embryologist throws out anyways after. i get to see what my lead and mercury levels are right away and they also test hormones and things like that. I get $50 every time i pee in a cup so not too bad :-) im doing it anyway at each visit so they just take a little extra for the study.

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