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Best.News.EVER.

realisticdreamsrealisticdreams member
in Special Needs
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Dear P,

I was prepared for todays news from your urodynamic study to be life altering.  But, more along the lines of will we move forward with traditional urethral cathing when you are ready, OR do we need to get prepared for the mitrofanoff procedure/baldder augmentation.  
I was so NOT prepared for the doctor to say that your bladder, is almost back to perfect.  It's not enlarged, it has good tone, it is not neurogenic, your sphincter is working, IT"S ALL WORKING.  
Thanks for laughing hysterically as I cried and hugged the doctor, and the doctor cried.

I love you so much,

Mommy

I can't believe our future isn't going to consist of how the hell to achieve social continence with a child who won't cath, or a surgery with a real mortality rate.  It's just incredible.  

(her bladder contraction was a little longer than typical and not quite as smoothe, but not out of the realm of functional!  Thought process is that, the surgery she had in May to cause temporary incontinence took enough pressure off her bladder/kidney's to kind of reset it and help it heal)  

OMG! I am so so happy for you and DD! This is spectacular news! I think it needs it's own post so EVERYONE can do a happy dance for you.

DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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