High-Risk Pregnancy

22weeks and baby has complete heart block

hi.. my name is Crystal and im currently 22weeks pregnant well ill be 23 tomorrow and i just found out on tuesday that my baby has a complete heart block meaning the signals from the atrium arent reaching the bottom ventricles.. when i had the ultrasound on tuesday her ventricles were only beating at 50bpm.. and there was fluid built up around her heart and belly i was told she wasnt going to make it. But they started me on a steriod because i have lupus antibodies which are attacking her heart..causing this problem.. anyway they started me on the steroid and a pill called terbuline which causes my heart rate to rise in hopes of raising hers although the doctors didnt think this would work.. so i started those tuesday and stayed in the hospital overnight and had another scan wednesday .. well everything improved drastically.. her bpm went from 50 to between 75 and 80 which they thought was great and also it seems like one of the ventricles is starting to beat on its own meaning it wouldnt be a complete heart block anymore. So then i had another scan today and its the same thing but there is no longer fluid around her heart.. seems to good to be true but im really scared that its just the medicine and i dont think i can stay on either of them for to long.. so thats whats going on.. im just looking for some hope.. has this happened to anyone else.. and was the outcome good? i have another scan in the morning and im so nervous because they took me off the terbuline and im really hoping her heart rate stays up.. please pray for a miracle =/

Re: 22weeks and baby has complete heart block

  • I don't have experience with this either, but sending prayers to you and your little one.
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  • I don't have experience with this either, but I am very glad to hear you have some hope.  I will be praying for you and your little girl in hopes this condition improves. 
  • first let me say I am very sorry that you and your baby are going through this. hang in there and be strong. no experience with this, but my best friend was born with half of a heart. they didn't think she would make it, and immediately after birth she needed multiple surgeries, but she is 23, married and one of the most amazing people I know. her parents kept faith and did all they could and she made it. sometimes miracles happen, I am hoping so in your case too. T&Ps for you...best of luck, you have support no matter what happens.

     


  • My thoughts and prayers go out to you and your little one. Just think positive and just remember we are all here for you!

  • I have a update =) i just came back from another scan.. everything is still the same..the steroids are working so theyre going to keep me on them for a few moew weeks and go from there.. the hydrops she had around her heart and belly are all gone which is a great sign now i just go back for weekly scans.. the doctors seem very happy with the progress thats happened since last week
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