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Too much sleep?

S-TunaS-Tuna member
in Special Needs

Anyone have problems with kids who sleep too much? DS (17 months) has multiple brain abnormalities. 3 times in the last month, he has slept 17-19 hours straight overnight and would have slept longer had we not woken (woke? Awakened?) him up. He routinely naps for at least 3 hours a day and sleeps 11-13 hours overnight. The pediatrician wants to talk to his neurologist. She also wants to check his thyroid.

I was just wondering if anyone else is in a similar situation? I feel silly for being concerned about my kid sleeping too much, but I don't really know if it is a problem or not, KWIM. "Is this normal?"

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Re: Too much sleep?

  • realisticdreamsrealisticdreams member
    imageS-Tuna:

    Anyone have problems with kids who sleep too much? DS (17 months) has multiple brain abnormalities. 3 times in the last month, he has slept 17-19 hours straight overnight and would have slept longer had we not woken (woke? Awakened?) him up. He routinely naps for at least 3 hours a day and sleeps 11-13 hours overnight. The pediatrician wants to talk to his neurologist. She also wants to check his thyroid.

    I was just wondering if anyone else is in a similar situation? I feel silly for being concerned about my kid sleeping too much, but I don't really know if it is a problem or not, KWIM. "Is this normal?"

    DD2 sleeps alot, she is almost 2 and her normal now is about 8pm-10am with a 2 hour nap, she was sleeping 7pm-11am (OR LATER) with her nap as well.  The pedi said to just wake her up and didn't really think much of it, I will mention it to neuro when we go in Feb and see if we can add that onto her neuromusclar lab re-checks.  

    M was probably around 17 months old when I noticed the peak of the massive amounts of sleep, however her MRI has been normal (unlike dd1) so i'm not sure.  Interested to see others responses.   

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • Assembly_ReqdAssembly_Reqd member

    the 17-19 hours is concerning to me. was there any sort of illness/fever or did he maybe have a milestone jump to tire him out more? Have you done an extended EEG to r/o seizures while sleeping?

    Nate sleeps 11 hours a night and will take a 2.5-3 hour nap each day.  I think of it as a karma payback of sorts. I consider having a wonderful sleeper and eater my "consolation prize" for a genetically challenged child..... ;P 

    WAY 2 Cool 4 School


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  • Assembly_ReqdAssembly_Reqd member

    Didn't he just start some walking/steps? is there any correlation? He could just be pooped.

    I would try and keep track of the sleeping for a couple of months and see if any pattern emerges.

     

    WAY 2 Cool 4 School


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  • S-TunaS-Tuna member
    imageAssembly_Reqd:

    Didn't he just start some walking/steps? is there any correlation? He could just be pooped.

    I would try and keep track of the sleeping for a couple of months and see if any pattern emerges.

     

    This latest time he was sick. He's been sick for a week now. It was the week before that when he took steps in PT. I can't remember anything specific that happened around the other two long sleeps. The pediatrician wants bloodwork this week just to make sure everything is okay. I will also start writing it down.

    Thanks for the insight.

    (We go back to PT tomorrow for the first time since the steps. Fingers crossed for more!) 

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  • Assembly_ReqdAssembly_Reqd member
    imageS-Tuna:
    imageAssembly_Reqd:

    Didn't he just start some walking/steps? is there any correlation? He could just be pooped.

    I would try and keep track of the sleeping for a couple of months and see if any pattern emerges.

     

    This latest time he was sick. He's been sick for a week now. It was the week before that when he took steps in PT. I can't remember anything specific that happened around the other two long sleeps. The pediatrician wants bloodwork this week just to make sure everything is okay. I will also start writing it down.

    Thanks for the insight.

    (We go back to PT tomorrow for the first time since the steps. Fingers crossed for more!) 

    *chants* More steps! More steps! More steps!

     

    WAY 2 Cool 4 School


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  • kar5162kar5162 member
    DS was sleeping 12-13.5 hours a night and taking a 2.5-3 hour nap and still tired often and in retrospect had gotten very very cranky. We pushed for a sleep study and yup - his quality of sleep was beyond garbage. It was much improved on O2 and after they took out his tonsils and adenoids. It is apparently quite common with lower tone kids especially when they have lower tone in the core/upper body. He now sleeps a more reasonable number of hours and is SO much happier and energetic. We will probably do some thyroid testing as well soon, but sleep apnea was a big issue.
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  • Assembly_ReqdAssembly_Reqd member
    I just read an article about ped sleep apnea and I agree with the pp. I would take him to an ENT. If your DS already has a midline defect there is a higher chance that something could be structurally off while he is in prone position....
    WAY 2 Cool 4 School


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  • S-TunaS-Tuna member

    imageAssembly_Reqd:
    I just read an article about ped sleep apnea and I agree with the pp. I would take him to an ENT. If your DS already has a midline defect there is a higher chance that something could be structurally off while he is in prone position....

    I didn't even think about the link between midline issues and sleep apnea. I will definitely be talking with the pediatrician about it. Thanks! 

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  • Assembly_ReqdAssembly_Reqd member
    imageS-Tuna:

    imageAssembly_Reqd:
    I just read an article about ped sleep apnea and I agree with the pp. I would take him to an ENT. If your DS already has a midline defect there is a higher chance that something could be structurally off while he is in prone position....

    I didn't even think about the link between midline issues and sleep apnea. I will definitely be talking with the pediatrician about it. Thanks! 

    There is no link that I am aware of between midline defects and sleep apnea, but if you already have structures that are malformed along the midline, I would surmise that other stuff could be as well. The sleep system involves all midline structures so....

    WAY 2 Cool 4 School


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