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introduction

BunnyCookieBunnyCookie member
in Special Needs

hi . . . just wanted to introduce myself. i'm a mom of a 28-month-old boy who has been diagnosed with substantial speech, cognitive, and motor delays. he is getting ST, OT, and developmental therapy through the EI program, but is not responding as well to therapy as the therapists had hoped. we don't know yet what the cause of his delays is, or whether they will be temporary or permanent.

i am pretty overwhelmed right now trying to figure out what i need to do to be a good mom to a special needs child and felt like a support group of other special needs moms could be really helpful. looking forward to getting to know all of you! thanks for reading this far. 

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Re: introduction

  • mommy0411mommy0411 member

    Welcome and I completely understand! We are still in the beginning and it is all very overwhelming. 

    My son also has significant speech, cognitive and social delays and is in the same therapies as your DS. You are definitely not alone :)



    DS1: 4/15/2011
    Dx: ASD, SPD and receptive and expressive speech delay at 21 months
    BFP #2: CP 5/2012
    DS2: 4/24/2013
    BFP #4: Miscarriage at 5 weeks 7/2014
    BFP #5: 8/8/2014 Due 4/20/2015 
    Its a healthy girl!!!!! 
    Lilypie Pregnancy tickers
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  • realisticdreamsrealisticdreams member
    imageBunnyCookie:

    hi . . . just wanted to introduce myself. i'm a mom of a 28-month-old boy who has been diagnosed with substantial speech, cognitive, and motor delays. he is getting ST, OT, and developmental therapy through the EI program, but is not responding as well to therapy as the therapists had hoped. we don't know yet what the cause of his delays is, or whether they will be temporary or permanent.

    i am pretty overwhelmed right now trying to figure out what i need to do to be a good mom to a special needs child and felt like a support group of other special needs moms could be really helpful. looking forward to getting to know all of you! thanks for reading this far. 

    Welcome to the board!
    Does he have fine & gross motor delays?  (is he walking?)
    Did your pedi refer you to anyone else besides EI?  (Like a neurologist?)

    You will find tons of support here, and also if you just need to vent, we are good at listening.  

    I will say that at 28 months if he is significantly, SIGNIFICANTLY delayed,  I personally would want to be seeing neuro & having an MRI done.  I pushed for an MRI of DD2 around 1 year of age because she was delayed and significant at 1 doesn't really compare to significant at 2.  Granted DD1 has a boatload of medical issues that had me in freak out mode.  I'm just letting you know that personally, that is what I would want to do next.  (Their is also developmental pediatricians, but you would be moving towards neuro and then genetics most likely before them).

    Good luck! 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • BunnyCookieBunnyCookie member
    imagerealisticdreams:
    imageBunnyCookie:

    hi . . . just wanted to introduce myself. i'm a mom of a 28-month-old boy who has been diagnosed with substantial speech, cognitive, and motor delays. he is getting ST, OT, and developmental therapy through the EI program, but is not responding as well to therapy as the therapists had hoped. we don't know yet what the cause of his delays is, or whether they will be temporary or permanent.

    i am pretty overwhelmed right now trying to figure out what i need to do to be a good mom to a special needs child and felt like a support group of other special needs moms could be really helpful. looking forward to getting to know all of you! thanks for reading this far. 

    Welcome to the board!
    Does he have fine & gross motor delays?  (is he walking?)
    Did your pedi refer you to anyone else besides EI?  (Like a neurologist?)

    You will find tons of support here, and also if you just need to vent, we are good at listening.  

    I will say that at 28 months if he is significantly, SIGNIFICANTLY delayed,  I personally would want to be seeing neuro & having an MRI done.  I pushed for an MRI of DD2 around 1 year of age because she was delayed and significant at 1 doesn't really compare to significant at 2.  Granted DD1 has a boatload of medical issues that had me in freak out mode.  I'm just letting you know that personally, that is what I would want to do next.  (Their is also developmental pediatricians, but you would be moving towards neuro and then genetics most likely before them).

    Good luck! 

    his fine motor is actually pretty good--the occupational therapist thinks that his coordination is okay and the obstacle to performing tasks is more cognitive. in terms of gross motor, he can walk and run, so i'm very grateful for that. the big issue is core muscle weakness, so he can't jump and stairs are a challenge for him. sitting unassisted is tiring for him but we are working on it.

    we are doing the whole work-up right now. we will get a medical diagnostic meeting soon and also meet with a ph.d. developmentalist. i will definitely ask about an MRI at the medical diagnostic, thanks for the suggestion. 

    i'm really looking forward to having a community here. our developmental therapist actually has a son with developmental delays and she talked to me for a long time today and talked me off the ledge a little. it's so helpful to talk to moms who have been through similar things. thanks for the welcome to the board!

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  • grbnikgrbnik
    This is a great bunch of ladies, and I am glad you found the board.  Welcome!
    Warning No formatter is installed for the format bbhtml
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  • lite-brightlite-bright member

    Welcome. :)  

    image

    DD1, 1/5/2008 ~~~ DD2, 3/17/2010
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