Hello, I'm not sure if this is the right board for me or not. My daughter has mild/severe infantile Torticollis. I'm just trying to find some other mom's who have/are dealing with the same thing. We have had her in PT since she was 3mo. Since then the turning of her head/neck has gotten MUCH better to the point where she almost has no issues or troubles with the turning of her head. The tilt of her head however, has gotten worse and so has the shape of her head (not by much) and her facial symmetry.
She has gone from only doing PT every 2 weeks to going almost every week. At her last visit I asked the therapist what she thought a helmet would do for her and she said it would correct her facial muscles so her jaw is aligned and her muscles don't look droopy on the one side but she said it would do nothing for the tilt of her head. And she added that her head shape isn't off enough for insurance to cover it (she has no idea what insurance we have though) so tomorrow I am going to be asking for her to refer us for a second opinion to the Pediatric Specialties department. I'm nervous but with all the research I can find the helmet will help her a lot and correct a lot of issues that therapy will not.
Any other moms ever been in this situation or know someone who has? I only know of 1, possibly 2 moms who have LO's that had helmets and had Torticollis. Thanks