Miscarriage/Pregnancy Loss

My uterus was misdiagnosed!

So for years now my IVF doctor has said that I have a bicornuate uterus.... after losing 4 babies - my doctor sent me to have a hysteroscopy - the doctor doing the hysteroscopy wanted to make absolutely sure that I have a bicornuate because she wasn't convinced - she referred me to have a 3-D ultrasound.

During my ultrasound today... actually within the first minute - they found I have a SEPTUM! A freaking septum! My miscarriages/pProm could of possibly been prevented with the removal of the septum...

 I'm writing this post so that anyone with a uterine abnormality is aware that this misdiagnosis can happen FREQUENTLY. Once my septum is removed the chances of me having a successful pregnancy is approximately 80%- 90%!  

Please please push for your medical care - the squeeky wheel gets the oil! 

~Heather~ TTC Since 12/2009
Septated uterus, pcos (on metformin), MTHFR
Clomid # 1- July 2010 = BFN / #2 Sept 2010= BFN
IVF#1 - 1/2011 = BFN (Severe AF started 7dpo)
IVF#2 - 3/2011 = Ectopic
Aug 2011- FE - Thaw all - cancelled - embryos didn't make it!
Oct 2011 - IVF#3 = BFP!! ~ TWINS!!
Said goodbye to Twin B @ 9w5d
Hudson Edward ~ Pprom 18 wks 2/16/12 - We love you forever. You have our hearts.
8/15/12 5dFET = BFP! ~ Said goodbye at 7wks gestation
11/9/12 5dFET = BFP! ~ Said goodbye at 5wks gestation
12/28/12 - Septated Uterus Found (was misdiagnosed as bicornuate!)
Lilypie Angel and Memorial tickers

Re: My uterus was misdiagnosed!

  • How awful to have gone through all that and find this out now! I have a good friend that had a miscarriage after her ivf cycle and found out about a septrum after as well. It is what encouraged me to have a hysteroscopy before my third Ivf cycle. I hope this gives you hope that the next time will bring you a take home baby! I can only imagine how angry you just feel but hope you now have more answers then before and with the right RE, have success.

    I'm 33 DH is 36 
    Married 6/27/2009 Together since 10/22/2005
    TTC since 8/2010 (off BCP since 8/2009) 
    Unexplained Infertility
    8/2011, 1/2012, 3/2012 IUI #1-3 BFN 
    6/2012 IVF#1 BFN, 8/2012 IVF#2 FET BFN, 11/2012 IVF#3 BFP
    12/10/2012 U/S #1 6w4d - heartbeat  EDD 8/1/13 
    12/26/2012 U/S #2 8w6d - No more heartbeat, MMC; D&C; Chromosome testing normal; male :( RPL testing normal 
    4/3/2013 DX Asherman's Syndrome caused by D&C, hysteroscopy done
    June 2013 IVF #4 planned 
    5/12/2013 SURPRISE BFP! Natural cycle 
    7/11/2013 Panorama results Normal!!! Team Pink, partial previa moved up in 2nd tri9/5/13 (19w) AS scan shows short cervix, 2.5 cm 9/19 (21w)  Cervix is worse 1.87cm, bed rest 10/26 & 10/27 steroid shots 12/19 (35w) DX: SGA Baby went from 57% percentile to 18th percentile in 6 weeks. Weekly BPP and NST until she is here. 1/17/18 Growth scan puts Abby below 10th percent in size, low amniotic fluid, and less movement. Time to induce!
    1/18/14 2:11am Abigial Morgan is here! 5lbs 14oz and 18 inches of pure cuteness!!!

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  • So sorry you've had to suffer losses to find this out, but glad you were able to get some answers and hope for a healthy pregnancy once this is taken care of. 
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    mutt_zps2fb5f039-1_zps7220f27c
    BFP 11.8.12 * EDD 7.17.13 * MC 12.20.12
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  • Thank goodness you have gotten a correct diagnosis!! Prayers for a quick and healthy pregnancy!!
  • I am so sorry that you are here :( and that you have gone through all of that. I'm glad you have finally found some answers and will be able to get started on a new path with success! 

    My doctor noted a " suspicion of a heart shaped uterus or a possible septum in the midline of the uterus" when she performed my D&E. I have a follow up with a RE next week to look further into this. 

    PCOS & ute crew member
    BFP #1: 10/24/2012  EDD 7/3/13, missed m/c @ 9 weeks, D&E 
    DX: Septate Uterus. Septum resection 6/4/13
    BFP #2: 12/20/2013  EDD 9/1/14, missed m/c @ 7weeks, D&E
    BFP #3: 5/26/2014 EDD 2/7/15, missed m/c @ 9 weeks, D&E- DX Trisomy22
    RPL, Karyotyping, and SHG: All Normal
    BFP #4: 9/6/14 EDD 5/16/15 Praying for our RAINBOW!
    image
    Baby GIRL on the way!!
    **All AL Welcome**

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